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Transition to adolescence and beyond. Dan Wood Consultant in Adolescent and Reconstructive Urology University College London Hospitals Honorary Consultant Urologist Great Ormond Street. Objectives. Some definitions What does transition mean? ‘ C’ing the issues Other issues.
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Transitionto adolescence and beyond Dan Wood Consultant in Adolescent and Reconstructive Urology University College London Hospitals Honorary Consultant Urologist Great Ormond Street
Objectives • Some definitions • What does transition mean? • ‘C’ing the issues • Other issues DW UCLH
Adolescence • Latin • Adolescere • (to) grow • Presents Challenges DW UCLH
“An increasing number of chronically ill children are surviving into young adulthood. Achieving a seamless transfer is becoming one of the greatest challenges facing both children's and adult services.” Fiona Smith Adviser in Children's and Young People's Nursing Royal College of Nursing DW UCLH
What do we think? Friday November 7th2008 Tranisition clinic - GOSH DW UCLH
Challenges consultation Change DW UCLH
Consultation • Different environment • New personnel • Information loss • Different medical approach • Potential for conflicting messages DW UCLH
Consultation • Building for the rest of your life • Regular checks • Baseline • New team members • Watch for problems • ?Need for travel??? DW UCLH
Challenges consultation confidentiality Change DW UCLH
Confidentiality • Parents in vs. parents out • New issues • Embarrassment • We have to look to build a trust • They will grow up DW UCLH
Challenges consultation confidentiality Change consent DW UCLH
Consent • No consent is just me • All complex decisions need time • …and discussion • Important role of our CNS • Choices – this can be difficult DW UCLH
Consent • For straight forward procedures – usually no problem • Able to sign for themselves • May raise issue from the past • Should be a process not an event DW UCLH
Challenges consultation confidentiality consent concordance Change DW UCLH
Concordance • With freedom comes responsibility • Some have difficulty with this • Unsafe? • Difficult • Usually finite DW UCLH
Challenges consultation confidentiality Change concordance consent conjugation DW UCLH
Conjugation • Permission • Ability • Fertility • Concerns DW UCLH
Challenges consultation confidentiality Change consent concordance conjugation conflict DW UCLH
Conflict • With me • With you • With others • With themselves DW UCLH
Conflict • Listen • Understand • Explain • Give time • Re-Explain • Empower DW UCLH
Other concerns • Future surgery • Continence • Other diseases • Children (1/70 – 1/100) • Historical comparison DW UCLH
Obstetrics • Several studies – 45 ladies 49 deliveries • May need Caesarian section • All likely to need shared care • Prolapse is a problem but treatable DW UCLH
The long-term • Regular reviews • Good communication with GPs • Follow-up bloods • Scans • Expertise • Outcomes - ?database DW UCLH
Summary • Some definitions • What does transition mean? • ‘C’ing the issues • Other issues DW UCLH
Thank you Any Questions? DW UCLH