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Maximizing the social impact of cancer registry data.
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“Putting timely, accurate and complete cancer statistics in the hands of citizens with powerful displays and data formats that enable people with different backgrounds to understand them is one of the most important contributions SEER has made” Barbara Rimer, DrPH, 2003
How can we do better? • Broader goals • New audiences • Information design • Technology and tools • Strategic, proactive approach
This project • Design & test new displays of cancer data • Propose best practices • Share with cancer registry community
Stakeholders • SEER • OCE • HCIRB • ACS • Cancer registries
Meeting objectives • Important data stories • Priority audiences • Outcome of interest • Products and tools
Structure of the day • Short orientations • Full group discussion • Small group activities • Consensus and next steps
Doing this well could improve… • Social norms • Motivation to act • Demand for services • Knowledge & awareness • Perceptions, beliefs & attitudes Friemuth & Quinn (2004) Am J Public Hlth
Unintended consequences? • Confusion • Unwarranted fear • Erroneous conclusions
Improving chances of success • exposure • attention • understanding • elaboration • integration McGuire, 1989; Petty & Cacioppo, 1981
Elaboration & Integration • Relevance & identity • Personal • Demographic • Geographic • Self-referential thinking
Basic communication model Source Message Channel Receiver Effect
Basic communication model Source Message Channel Receiver Effect Cancer registry data
Basic communication model Source Message Channel Receiver Effect Cancer registry data Activity 1
Basic communication model Source Message Channel Receiver Effect Cancer registry data Activity 1 Activities 2-3 Activities 2-3
Basic communication model Source Message Channel Receiver Effect Cancer registry data Activity 1 Activity 4 Activities 2-3 Activities 2-3
Engaging self-referential thinking – important, indicate what stimulates it More motivated to process deeply when information is perceived as relevant How do we do this? Local (geographic) Demographic, Context Facilitate understanding with: standardized forms Meaningful context: social math Add communication models Demography vs. Geography Units of identify: geographic (slide of town sign; Baltimore map) How heterogeneous is the unit of identity? Identity include demographics too – who is Hispanic? Example: “If you’re a man over 50…”