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CO-EXISTING WORKGROUP FINAL PRODUCT. Searching for a better system for working with MR/DD/MI children and adolescents. TARGET POPULATION.
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CO-EXISTING WORKGROUP FINAL PRODUCT Searching for a better system for working with MR/DD/MI children and adolescents
TARGET POPULATION • Any person from birth – 21 years of age who has been diagnosed with both a mental illness and Borderline Intellectual Functioning through Moderate Mental Retardation. PDD, Autism and Asperger’s Disorders are included.
DESIRED OUTCOME • To develop an approach to earlier identification of MR/DD/MI disorders so that services can be introduced much sooner to the child and their families to allow the child to grow into as self sufficient an adult as possible with the resources available to support them in their efforts.
SUMMARY OF CURRENT PRACTICE – CENTERPIECE STRENTH’S TO BUILD ON
SUMMARY OF CURRENT PRACTICE – OPPORTUNITIES FOR TARGETED IMPROVEMENTS
Caveat Evidenced based practice with this target population is limited. Several practices are being researched but data is not completed. Traditionally this population has not been researched to the degree that others may have been due to the belief that little change could occur - maintenance was the goal. Therefore, we identified several promising practices, but few evidence-based practices based on our workgroup's criteria.
IMPLEMENTATION STRATEGIES/RECOMMENDATIONS • Collaboration at all system levels • Early prevention and/or identification • Remove/decrease stigmas • Educate communities/parents/grandparents about these co-existing diagnoses • Develop a resource guide for families and professionals that both identifies diagnoses and levels of care/services available
WHAT IS MISSING FROM OUR SYSTEM? • Gap with IQ 55-70 for services • Supported housing limited • In-home services limited • Foster trained parents for this age is limited • Supported employment • Socialization opportunities ie. Drop in’s, etc. • Special family care services need “bumped” up • Respite for families • Population more vulnerable to abuse/neglect – need trauma based system in place • Not having enough qualified therapist • Not having enough qualified providers • Kids without SSI have financial issues – often Medicaid doesn’t cover services needed • Kids more at risk for juvenile justice system, substance abuse • Families sometimes have to turn kids over to DHHR to get more specialized services • Independent living skills deficits • Recreation/socialization skills deficits • Services or TBI’s
STRATEGIES THAT NEED IMPROVEMENT/FURTHER DEVELOPED • SSI work hours maximum needs increased • Expand specialized family care • Day treatment or drop in centers developed • Expand waiver criteria to include need not just diagnosis • Review maintenance of services (waiver) • Develop service coordinators to assure individualized services • Streamline waiver application process • Expand case management services/hours • Expand socially necessary services to all clients not just clients in custody or clients with an open case
STRATEGIES THAT NEEDS CONTINUED SUPPORT • New group homes for gap population at Burlington, B & T • WVU Center for Excellence in Disabilities • Waiver program • Specialized family care • New position bureau funded for WVCED to do autism spectrum disorders • MU Autism training program • FAST program trying to expand • Children’s liaison’s at comprehensives • CHIPS program • Regional Clinical Coordinators • WVSOC – flexible funds, change in philosophy, individualized care planning • Socially necessary services • Birth to 3 program
TRAINING IMPLICATIONS/ RECOMMENDATIONS • Training is needed in a variety of settings and systems. The following are some, but this is not an all inclusive list: • day cares • head start • juvenile justice system • therapists • higher education • foster care families • DJS • DHHR • parent liaisons