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Community Engagement in HIV Research

Community Engagement in HIV Research. Living into the History of Activism. Victoria A Cargill, M.D., M.S.C.E. Office of AIDS Research, NIH. Goals of Presentation. Timeline review of AIDS Activism in the U.S. Impact of HIV advocacy on clinical research What advocacy is/what you need

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Community Engagement in HIV Research

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  1. Community Engagement in HIV Research Living into the History of Activism Victoria A Cargill, M.D., M.S.C.E. Office of AIDS Research, NIH

  2. Goals of Presentation • Timeline review of AIDS Activism in the U.S. • Impact of HIV advocacy on clinical research • What advocacy is/what you need • What advocacy is NOT • Why we need advocates • Living into the history

  3. Asking the hard questions –repeatedly Identifying the issues Understanding the issues Making the commitment to understand the science Asking for help when you don’t Helping others to understand the issues Admitting when you are wrong Working across artificial divisions – it’s the VIRUS stupid Understanding the difference between compromise and capitulation HARD WORK Empowering and Infectious What Advocacy Is …

  4. Mean-spirited Rudeness for the sake of being rude About being the center of the world Putting others down to raise up yourself Ignorance + Arrogance Based upon irrationality Hijacking important work for a subtext agenda Pitting equally impacted groups against each other What Advocacy Is NOT…

  5. Advocates come in all… • ages • races • genders • locations • serostatus • celebrity status

  6. We need advocates to say what others cannot… Very pointedly…. With humor…. And deadly aim….

  7. Living into the history! Get UP, Get BUSY, GET MOVINGTHERE’S WORK TO BE DONE!!!!

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