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“Welcome to my World” Living daily life with a Traumatic Brain Injury Kelli Schoen- TBI Survivor Janet Spires, RN.
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“Welcome to my World”Living daily life with a Traumatic Brain InjuryKelli Schoen- TBI SurvivorJanet Spires, RN
Facts about TRAUMATIC BRAIN INJURYHow many people have TBI?1.4 million in US each year sustain a TBI50,000 die235,000 are hospitalized1.1 million are treated and released from the ERCases not seen or treated-unknownLEADING CAUSESFalls-28%MVA-20%Struck by/against-19%Assaults- 11%HIGHEST RISKSMales 1.5 times more likely than femalesHighest age groups- 0-4 and 15-19COSTSDirect and indirect costs of TBI totaled an estimated $60 billion in the US in 2004
Traumatic Brain Injury TBI is an insult to the brain, not of a degenerative or congenital nature but caused by an external physical force, that may produce a diminished or altered state of consciousness, which results in an impairment of cognitive abilities and/or physical functioning. It also can result in the disturbance of behavioral or emotional functioning. These impairments may be either temporary or permanent and cause partial or total functional disability or psychosocial maladjustment. Acquired Brain Injury An ABI is an injury to the brain that has occurred after birth and is not hereditary, congenital or degenerative. The injury commonly results in a change in neuronal activity, which affects the physical integrity, the metabolic activity or the functional ability of the cell. This term does refer to brain injuries induced by birth trauma. Examples: tumors, clots, strokes, infection(encephalitis, meningitis) seizures, toxic exposures(substance abuse, lead), lack of O2(airway obstruction, strangulation, drowning ,carbon monoxide poisoning)
Why is Memory Important? • Safety • Self Esteem • Learning New Material • Socialization
COGNITIVE Memory issues Perceptual problems Concentration Lack of initiation Comprehension/understanding Expressive difficulties Sequencing problems Slowed response Inflexibility Disorganization Problem solving difficulties
Cognitive Disabilities • Acquired Brain Injury • Mental Retardation • Medication • Autism • Chronic Pain • Ageing • Degenerative Neuro-Diseases (MS, ALS) • Cerebral Palsy • Diabetes • Mental Illness • Drug and Alcohol Abuse • Developmental Disabilities
What is Memory? Memory is … an integral part of what makes us human. Memories connect us to the past and guide us through the future. They provide us with continuity and enable us to make sense of our world.” Weinstein, 1995
“Old School” Memory Aides • Notebooks • Post –its • Daily calendars
“Welcome to my World”Using technology to assist in memory • How my world changed
Technologies I use • Internet • GPS • Bluetooth • Smart pen • I Pad, I Touch • E cigarette
Other technologies available • Cell phones • Watches • I books