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Empowering Patients and Communities Report from the TaskForce on Community Involvement in TB Care and Prevention Paris, 31 October 2006. Background. New Stop TB strategy launched March 2006.
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Empowering Patients and CommunitiesReport from the TaskForce on Community Involvement in TB Care and PreventionParis, 31 October 2006
Background • New Stop TB strategy launched March 2006. • Mandate given during 1st ACSM Subgroup at country-level meeting last year; joint effort of WHO and Partnership. • Representation of relevant constituencies: • Patients, community representatives from grass root level, CSOs, NGOs, NTPs, other WHO departments involved in similar work.
Objectives • To reach consensus on the terminology used to describe initiatives aimed at establishing partnership with communities. • Present results of the review of community involvement in TB control and discuss emerging issues. • To build consensus on draft guidelines on promotion of community involvement in TB control.
Methodology • A series of country reviews conducted (Bangladesh, Indonesia, Kenya, Malawi, Mexico, Philippines, Uganda) • Literature reviews: • patient empowerment in TB control, • community involvement in TB control. • Above summarized and discussed in concept paper disseminated to all Taskforce members before meeting. • Consensus building on recommendations a joint effort by all taskforce members.
Process • Milan meeting: reaching consensus on broad recommendations. • In order to speed up the process, forming a writing committee. Workshop aimed at finalizing 1st draft of final document November 8-10. • E.mail-based finalization of document (task force). • Endorsement by ACSM Subgroup at country-level, and STAG Subgroup.
Final document: main areas of focus • Target audience: NTPs and Partners (e.g. Civil Society, Patients, Local community etc.) engaged in TB care and prevention • Overarching principles (with definitions): - subsidiarity, sustainability, empowerment, local ownership, - human rights and individual responsibility, social justice, solidarity, stigma, -partnerships with patients, local community, and civil society at different levels, no one-size-fits-all, in line with MDGs.
Final document: main areas of focus • Policy guidance for NTPs: • Developing or revising NTP policy to include component 5 of Stop TB strategy (actions, principles) • Advocacy, Communication and Social Mobilization (ACSM) • Preparing strategy and operational plan for component 5 with specific behavioral objectives and targets (actions, principles) • Building capacity for component 5 and all other areas relevant for quality TB control (actions, principles) • Developing IEC and BCC strategy, methodologies and materials for different levels and stakeholders • Approaches to component 5 need to take into account special challenges (eg. TB/HIV, MDR TB, indigenous populations, prisoners, etc.)
Final document: main areas of focus • Ensuring quality of service delivery • Ensuring quality of broad range of services provided at community level (actions, principles) • Establishing M&E/supervision • Establishing monitoring, evaluation and supervision plan for component 5 • Budget/Financing (actions, principles) • Operational Research • Additional operational research is needed to answer general or context-specific questions (actions, principles)
Timeline for finalizing document • Meeting of writing committee to work on preparing 1st draft of final document – by mid November • Draft circulated for comments (taskforce and ACSM at country-level) – comments by mid December ‘06 • Endorsement by ACSM subgroup at country-level – by mid January ‘07 • Circulation to STAG subgroup for discussion/endorsement (email) – by mid January ‘07 • STAG endorsement – by end January ‘07 • Final editing and publication –by end February ‘07