New Data Strategy on People with Disabilities

1. New Data Strategy on People with Disabilities • A Community Perspective • Presented by Laurie Beachell • CCD National Coordinator • November, 2011 • Note: This presentation uses information made public by HRSDC and materials from previous consults on data, most notably the work of Cam Crawford. I co-chair the Technical Advisory Group on Data Collection along with Christian Dea of HRSDC.

2. Purpose of the presentation • Highlight from community perspective key issues re: HRDSC new data collection strategy • Identify community data collection needs For discussion only

3. Context for Change Identified by HRSDC • HRSDC is modernizing its data portfolio to: • better reflect current and emerging information needs of Canadians • have a more cost-effective, responsive and flexible data collection strategy • improve data access and dissemination • The modernization of HRSDC’s data portfolio provided an opportunity to • integrate the monitoring of PWD into the mainstream by collecting information on PWD alongside the Canadian population • address limitations of previous data approach in terms of frequency, flexibility, timeliness and efficiency • The new data strategy on PWD, endorsed by the Minister in April 2010, is a Departmental priority For discussion only

4. Key Directions • Data requirements and needs identified through previous consultations guided the development of the new data strategy on PWD • Move to a new citizen-centered information system that will: • Provide information more frequently • Maximize utilization of existing information, specifically • Statistics Canada surveys including the new National Household Survey • Program/tax information • Better integrate different sources of information • StatCan surveys and program/tax data at national level • Surveys and program data at provincial and territorial level • New analytical tools to complement the existing information • Make the information more easily accessible and user-friendly • Continue to collect key PWD information • Type of disability and level of severity • Barriers/supports • Key labour market, learning, health and social outcomes For discussion only

5. HRSDC Three Prong Approach PWD Integrated Information Platform • New interface to facilitate data access • Integrated data infrastructure • New analytical tool to facilitate monitoring and analysis (e.g. micro-simulation, reports, indicators, research) • New dissemination strategy Survey Data Program/Tax Data • Consistent information from existing StatCan surveys on Canadian population, including PWD, at the national, provincial and territorial levels • New PWD identification questions measuring type and severity of disability Better use of existing information from program and tax data on disability program beneficiaries at detailed geographic level Goal • Labour Force Survey (working age adults) • Canadian Community Health Survey (ages 12 +) • Survey of Labour and Income Dynamics and General Social Survey (ages 15+) • National Household Survey (all age groups) • Currently exploring Tax data (Disability Tax Credit) and Canadian Pension Plan Disability (CPPD) data • Could extend to other programs Data Instruments Labour Market e.g. Health e.g. Social Aspects, e.g. • Demographic characteristics • Type of disability • Benefits and income • LM participation • Education • Income • Aids and devices • Barriers & enablers • Health Status • Health care • Stress • Aids and devices • Barriers & enablers • Family • Caregiving • Social support • Aids and devices • Barriers & enablers Information For discussion only

6. Mapping Data Needs into the New Data Strategy

7. Benefits of New Data Strategy Identified by HRSDC • The new data strategy offers many benefits • More efficient use of existing resources • More responsive, flexible and frequent information • Increased access to data • Translates data into user-friendly information • Enables comparisons with the general population • Consistent with international developments (e.g. USA, UK, Australia) For discussion only

8. HRSDC Considerations HRSDC • Some considerations need to be taken into account in implementation of the strategy • Conceptual framework • Definition of disability • Historical comparability • Scope • Target population and sampling • Provinces and territories, children, young adults and Aboriginals, residents of institutions • Proxy response • Multiple data sources and variance in disability rates • Content • New questions to develop to meet other data needs: e.g. • Cause and duration of disability • Aids and devices • Barriers and enablers • Other emerging needs • Dissemination • Documentation • Coverage varies across programs, use of multiple data sources • Privacy and access to data and information For discussion only

9. Core HRSDC Disability Requirements • Core HRSDC data needs fall under three main categories: • Legislative requirements: e.g. Employment Equity Act, Canada Pension Plan Act, Canada Disability Savings Act • Regulatory, policy and program reporting and directions: e.g. Canada Pension Plan-Disability Program, Labor Market Agreements for People with Disabilities, Opportunities Fund for Persons with Disabilities, Canada Student Loans, Canada Disability Savings Program, etc. • International obligations & commitments: e.g. Human rights treaty reporting such as the United Nations Convention on the Rights of Persons with Disabilities, Organization for Economic Co-operation and Development studies • To meet its core disability data needs, HRSDC requires: • Time-series comparability • Comparability with information about the non-disabled population • Information about Canadians of all ages, including children • Information about type and severity of disability • Information for all provinces/territories For discussion only

10. Community Perspective on Key Issues Program Data operate from different disability definitions. Definitions of disability within program areas are more about eligibility than the defining of disability New data will not be comparable to PALS Sample size will likely be too small to give reliable provincial data. Integrated models may create new information but depth of survey limited because survey question time is limited. Issues of use of proxies versus interviewing persons with disabilities. Access to information may be improved and information may be more useable by community. Data Groups not adequately represented- children, aboriginal people,

11. Community Data Needs/Priorities • Basic profile • Employment • Income • Disability Supports • Citizenship and social inclusion For discussion only

12. Basic Profile How many Canadians have disabilities, what kinds ? Prevalence and kind by province and territory Severity Age, gender, visible minority, Aboriginal person, immigrant status, family living arrangements Trajectory of disability Others affected by disability

13. Employment • How well are pwd’s integrated into paid labour force? • Labour forces status, • Frequency and duration of employment • Distribution of occupations and industries • Profile of people with stable attachment to employment

14. Employment continued Barriers to employment Training, kind, results, barriers to Supports needed and supports provided % self employed Extent of voluntary work

15. Income • What is the situation of people with disabilities? • Level of income, by income source and overall • Income adequacy –LICO • Extent of reliance on charities-food banks, etc.

16. Disability Supports • What disability supports do people need and what are they getting? • Pattern of utilizations • Providers, family, agency, gov’t. • Gap between need and what is received • Reasons why people don’t receive • Most difficult to access supports.

17. Citizenship and Inclusion Health Housing Personal safety Liberty and self-determination Freedom of movement Equal recognition and treatment under the law Property ownership

18. Ongoing Considerations Sample Size sufficient for breakdowns by province and territory. Data on Aboriginal Peoples Comparability of data Timely and accessible .