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Managing Knowledge. Kinta Beaver Professor of Cancer Nursing School of Health University of Central Lancashire kbeaver@uclan.ac.uk. How do we manage knowledge?. Health Care Generate (research), share, disseminate, apply . Evidence based practice = effective and efficient health care .
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Managing Knowledge Kinta Beaver Professor of Cancer Nursing School of Health University of Central Lancashire kbeaver@uclan.ac.uk
How do we manage knowledge? Health Care Generate (research), share, disseminate, apply Evidence based practice = effective and efficient health care
Where do we get our evidence? • Historical approach – go to library Books and Journals Write a letter !!
British Medical Journal • Weekly journal ! • A million ‘visitors’ a month • 30 associated journals • BMJ’s website has articles going back to 1840 • Dr Eager on Fever • Influence of Climate on Consumption • Dr Fife on a Case of Jaundice • Death from Brandy and Salt
Knowledge Implementation • Does change happen as a result of having knowledge/evidence? • Is it about more than just the evidence?
Promoting Action on Research Implementation in Health Services (PARIHS) Framework • The level and nature of the evidence • The environment in which research is to be placed • The way in which the process is facilitated Kitson A et al. (1998). Enabling the implementation of evidence based practice: a conceptual framework. Quality in Health Care. 7:149-158 Rycroft-Malone J et al (2002). Ingredients for change: revisiting a conceptual framework. Quality and Safety in Health Care. 11:174-180
Mindlines • Ethnographic study of GP practices • GP’s used mindlines rather than guidelines to inform decision making
Mindlines • Tacit knowledge (difficult to relay) • Based on experience and beliefs • Habits and rituals • Emotional content • E.g. Riding a bicycle (you know how to do it but what if you had to write down how to do it?)
Knowledge Change Research Evidence Environment/context Facilitating factors Mindlines
1991 - 1995 • Breast cancer • Women had specific information needs • Outpatient appointments with drs after treatment not meeting needs • Need new approaches to follow-up • Should fully inform women • Specialist nurses should provide information
Was this evidence well received ? • Off to a slow start • ‘Tip them over the edge’ • Mindlines – paternalistic attitude prevailed, something will be missed if not seen by dr in OPD • Environment not ready?
Environment • Fewer specialist nurses • Nurse-led clinics were a novelty • No policy focus on information provision • No change in practice • Historical practice continued
Time to pause for thought What do we know? • OPD not meeting needs • Breast care nurses were an excellent source of specialist information • Local recurrences rarely detected in asymptomatic women at outpatient visits by clinical examination
The Plan in 1997 • Specialist nurses provide follow-up care • Telephone people at home • No need for clinical examination • Routine mammograms to proceed • Aim to meet information needs not search for recurrence • RCT (Hospital vs Telephone) to show this was effective
Why? • Mostly a lack of interest (no body of evidence) • Something would be missed (mindline) • Specialist nurse roles still under-developed (but there was progress) • Found one hospital and 2 breast care nurses prepared to ADD ON telephone follow-up • No RCT (yet)
Pilot Study (1997 – 2000) • Telephone follow up by specialist nurses –was it acceptable and feasible? • Involve clinicians in development of intervention (knowledge exchange, knowledge sharing, understand environment and mindlines) • Demonstrated that it could work in practice • Still some scepticism • Was telephoning people ‘real work’? • Credibility (mindline)
2002 • More people surviving cancer – OPD busy & not economically sustainable • More nurse specialist posts • More nurse-led clinics • Surgeons and oncologists prepared to randomise women to hospital or telephone follow-up • Breast care nurses keen to be involved in follow-up service delivery • Call for new approaches • Environment changing • Mindlines changing
Comparing hospital and telephone follow-up after treatment for breast cancer
Did practice change? Added to body of knowledge Part of the bigger picture
Environment (Policy context) “The aim of the NCSI is to ensure that those living with and beyond cancer get the care and support they need to lead as healthy and active a life as possible, for as long as possible.” 2010
NCSI • Current follow-up arrangements not meeting needs of survivors • Patients want more information and advice • Shift towards information provision • Need new approaches to follow-up
Facilitators • Clinical champions • Strong leadership from experienced BCNs (respected and valued members of team) • Strong multidisciplinary team working • Working together (academics and clinicians)
Managing new knowledge • Long journey to implementation (evidence, environment, facilitators, mindlines) • What happens when we have implementation but then gain new evidence? • Knowledge is evolving – dynamic, not static
Breast Screening 1986 Breast Cancer Screening: Report to the Health Ministers of England, Wales, Scotland and Northern Ireland By a Working Group chaired by Professor Sir Patrick Forrest “The information that is already available from the principal overseas studies demonstrates that screening by mammography can lead to the prolongation of the lives of women aged 50 and over with breast cancer. There is a convincing case, on clinical grounds, for a change in UK policy on the provision of mammographic facilities and the screening of symptomless women”
Professor Michael Baum • Breast specialist surgeon • In 1987 commissioned by DOH to set up first screening unit • Strong supporter of breast screening
Breast Screening The illusions and disillusions of breast screening “We are using state of the art imaging and modern therapy to service a programme based on data that is 20 years old”
New Knowledge 8 Trials. 600,000 women “For every 2000 women invited for screening throughout 10 years, one will have her life prolonged and 10 healthy women, who would not have been diagnosed if there had not been screening, will be treated unnecessarily. Furthermore, more than 200 women will experience important psychological distress for many months because of false positive findings. It is thus not clear whether screening does more good than harm.”
Will we abandon breast screening? • Political suicide? • Environment and Mindlines • Early detection is a good thing • If in doubt cut it out • At its simplest level breast screening saves lives • BUT it is not simple – it is complex
Hang in there ! • Consider environment, facilitators and mindlines • Be receptive to change • Be open to new ideas and possibilities • Keep up with new knowledge (somehow !) • Maintain enthusiasm • Real people at the heart of what we do
What about unknown knowns? “It ain’t what you know that gets you into trouble. It’s what you know for sure that just ain’t so” Mark Twain