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Patient & Carer Involvement Subgroup Gareth Jenkins

Patient & Carer Involvement Subgroup Gareth Jenkins. Remit. Consult with patients, guardians, carers, patient associations, voluntary sector, and the public Inform CoBiS on experiences of patients/carers & the public

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Patient & Carer Involvement Subgroup Gareth Jenkins

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  1. Patient & Carer Involvement SubgroupGareth Jenkins

  2. Remit Consult with patients, guardians, carers, patient associations, voluntary sector, and the public Inform CoBiS on experiences of patients/carers & the public Encourage patients and burn survivors to participate in the group, either directly or indirectly Give feedback to patients and carers on progress of CoBiS Inform the work of the other sub groups when relevant Participants to include patients / burn survivors, representatives of patient / voluntary organisations, NHS staff with interest in highlighting patient and carer concerns & member of public

  3. Meetings attendedby Changing Faces Scotland Scottish Burned Children’s Club NHS staff representing Glasgow Royal Infirmary Burns Support Group NHS staff from other hospitals with interest in patient involvement CoBiS Manager and/or Clinical Lead

  4. Patient views Patient views gathered in Glasgow Royal Infirmary Ongoing work to gather patient views / experiences via staff at other hospitals Commitment from Changing Faces and Scottish Burned Children’s Club to articulate clients/members experiences and concerns For example…..

  5. Transitions Stories / experiences brought to subgroup highlighted the difficulties experienced by some individuals and families around transition from paediatric to adult care within the health service One recommendation was that all patients leaving hospital are given card with contact number of hospitals and support organisations Meeting with patients to be held soon to gather views and recommendations

  6. Patient card A patient card has been produced for use in each of the hospital burns units – it will be given out to all burns patients The card includes a contact number for the particular unit, other hospitals across Scotland, Changing Faces Scotland, Scottish Burned Children’s Club and British Association of Skin Camouflage

  7. Audit of the availability of psychological support for patients sustaining burn injury

  8. Aim • To identify the availability of psychological support for burned patients in Scotland • Method • Questionnaire circulated to each of the burns units in Scotland requesting information on services provided • All units returned questionnaires – 7/7

  9. Services accessed

  10. Referral • Either formal (5/7) or informal (7/7) • Made by either nursing 1/7 medical 1/7 either 5/7 • Advice leaflets • Nursing/medical advice 7/7 • Physio 5/7 • Psychological issues 3/7 • Contact details • Unit 6/7 • Other e.g. ChangingFaces / SBCC 5/7

  11. Conclusions • Lack of dedicated psychology support • Variety of other support offered in units • More detailed audit required – into practice, training, and skills of staff, and needs of patients

  12. Recommendedongoing work for CoBiS Continue to gather patient views, via questionnaires, patient stories, meetings etc More work on transitions – following up the meeting with patients Carry out more detailed audit of psychosocial support Gain more psychology resource for burns units Develop routine psychosocial assessment and care plan for all patients Look at psychosocial training needs of staff

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