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SAMHSA FASD Center for Excellence

Callie Gass Project Director Building FASD State Systems May 19, 2003. SAMHSA FASD Center for Excellence. FASD Center for Excellence Legislative Mandates. Study innovative clinical interventions. Identify exemplary community systems of care. Provide technical assistance to communities.

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SAMHSA FASD Center for Excellence

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  1. Callie Gass Project Director Building FASD State Systems May 19, 2003 SAMHSA FASD Center for Excellence

  2. FASD Center for Excellence Legislative Mandates • Study innovative clinical interventions. • Identify exemplary community systems of care. • Provide technical assistance to communities. • Provide training on FASD. • Develop innovative prevention techniques. • Respond to recommendations by the National Task Force on Fetal Alcohol Syndrome.

  3. FASD Center Partners • Steering Committee • ICCFAS and National Task Force on FAS/FAE (NIAAA and CDC) • Grantees • Alaska • Four-State Consortium • Community Initiated Prevention Intervention

  4. FASD Center Goals • Advance the field of FASD. • Facilitate the development of comprehensive systems of care.

  5. Vision • A Nation without FASD • An integrated collaborative approach to FASD • Exemplary community systems of care for those affected by prenatal alcohol exposure • Communities that share experiences and lessons learned

  6. Current Activities • Releasing the 2002 Town Hall meeting report • Continuing the 2003 Town Hall Meetings • Convening FASD State Systems conference • Operating the Information Resource Center • Providing training and technical assistance • Supporting the replication of promising practices

  7. Town Hall Meetings • Six meetings March-August 2002 • Washington State • Colorado • Texas • Florida • Illinois • Michigan • About 300 attendees; almost 200 testifiers • Four additional Town Halls completed • Four more meetings planned

  8. Town Hall Meetings - Results Service systems encountered by affected families: • Education • Mental Health • Social Services • Developmental Disabilities • Substance Abuse Treatment • Justice/Corrections • Vocational Programs • Health • Entitlement Programs (e.g., Social Security)

  9. Identified Needs • Greater understanding of FASD in all service systems • Effective prevention strategies • Appropriate services for individuals with FASD and their families (e.g., diagnosis, education, housing, job support) • Respite care

  10. Identified Needs • Adoption support (e.g., subsidies, disclosure laws regarding prenatal alcohol exposure) • Developmental disability eligibility regardless of IQ • Financial support (e.g., estate planning) • Social outlets and acceptance • Lifetime advocates

  11. Recommendations • Coordinated, collaborative effort in the prevention and treatment of FASD • Consensus in terminology • Standardized diagnostic procedure • Better alcohol treatment services for women who are pregnant or have children

  12. Recommendations • National standards of care for individuals of all ages with FASD and their families • Research to validate treatment strategies for those with FASD • Affordable respite care in all communities • Knowledgeable treatment personnel in all systems of care

  13. Information Resource Center • Accessible by phone, mail, or e-mail and through the Web site • fascenter.samhsa.gov • 866-STOPFAS (866-786-7327) • Service in English and Spanish • Resources – publications, information, Web links, customized literature searches

  14. Information Resource Center • Total contacts via the Web site and toll-free number: 198 • FAS information requests: 46 • Training requests: 13 • Technical assistance requests: 12 • Web site information: 9

  15. Inventory of Services • About 400 services addressing FASD • 87 universal • 37 selective • 33 indicated – women • 254 indicated – affected individuals • Canada - 205; West - 102; Midwest - 54; South – 36; Northeast - 14

  16. Training and Technical Assistance • Trained over 2,000 providers, administrators, family members, government personnel, and community leaders • Provided technical assistance to family groups, provider organizations, corrections personnel, conference organizers, and Canadian FASD efforts

  17. Future Efforts • Identify, develop, and promote best practices in FASD prevention and treatment. • Provide training and technical assistance to increase competency in FASD diagnosis and intervention. • Assist States and communities to develop comprehensive systems of care.

  18. Future Efforts • Foster collaboration between family groups and providers to promote the delivery of quality services to those with FASD and their families. • Provide and evaluate trainings to professionals, families, women at risk, community members, and individuals with FASD.

  19. Future Efforts • Develop partners for universal FASD prevention. • Adapt state-of-the-art prevention practices to selective and indicated FASD prevention. • Women in Recovery summit September 8-9 • Training of substance abuse counselors • Groundwork for a Birth Mothers’ Network

  20. Future Efforts • Respond to requests from the National Task Force. • Explore opportunities for further collaboration with current and potential partners. • Identify and respond to emerging issues.

  21. Children are our future. Let’s do everything we can to keep them healthy!

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