Building blocks for our spina babies

1. Building blocksfor our spina babies

2. Building blocks for our spina bifida babies • Every person needs the acceptance, love and friendship of other people to be successful human beings.

3. Building blocks of relationships Our spina babies need our unconditional love

4. Building blocks of relationships Get involved Take interest Become friends Tonight

5. Building blocks of relationships • Let us start building the friendships

6. Building blocks of relationships Our three babies are ready to meet you!!!

7. OUR BABIES • Anika • 10 November 2010

8. OUR BABIES • Anika • het reeds • ses • operasiesgehad

9. 28 September 2011 Annelsms: Anika 10 maandeoud • Ek’tvanoggendvirAnika op ‘n duvet in sitkamergesitterwylekbottelsgemaak het in die kombuis, toe ekweersien toe’s sy so 3 meter verder op die vloer! • Take that spina bifida!!!:)

10. 12 Oktober 2011Anikasms Middagtannie Marlene!! Ekke het intussenvandatektannielaasgesien het begin leopard crawl enroldie helehuisvol! EkkryvolgendeSaterdag my nuwe splints by oom Jacques. Eksêook al ‘pap’ en ’klaar’ en weetpresies hoe om my mamma en pappaom my pinkie tedraai. Lekkerdaggie. Anika xx

11. OUR BABIES • Meyer • 9 Maart 2011

12. OUR BABIES • Meyer was in hospital from the 9th March till the 9th June. • Total of 92 days • He had 5 operations.

13. OUR BABIES • Zach • 30 April 2011

14. OUR BABIES • Zach bly vir13 dae in die hospitaalnasygeboorte. • Hy het net eenoperasiegekryom die ruggie toe temaak. • Dit was nienodigomvirhom ‘n shunt in te sit nie!!!

15. The storyof aspina bifida child

16. The story of a spina bifida child • 2 out of every 1000 births has spina bifida • Nelspruit had 3 in a period of six months!!!!! • What now ?.......

17. The story of a spina bifida child • Where does it start? • On day 18 after gestation the formation of the neural tube takes place. • The fusion of all parts of the neural tube are complete by day 28 • The spina baby has no closure of the tube.

18. The story of a spina bifida child • The tube may be open at the bottom end or at the head. • Our babies were born with non closure at the bottom

19. The story of a spina bifida child • Our babies have the more common severe form of spina bifida. • Myelomeningocele which occurs in 94% of cases • A sac filled with spinal nerves and spinal fluid outside the body

20. Spina bifida

21. The story of a spina bifida child • One or more of the vertebral arches fail to meet and fuse in the third month

22. Normal spine Myelomeningocele

23. The story of a spina bifida child • Hydrocephalus • Paralysis • Orthopedic problems • Spinal cord tethering • Bowel and bladder problems • Skin problems • Learning disabilities

24. The story of a spina bifida child • A. HYDROCEPHALUS: • Hydrocephalus is caused by too much brain fluid. Occur in 80% - 90% . • This can lead to an abnormal increase of head size. • Brain damage • Death • Hydrocephalus • Paralysis • Orthopedic problems • Spinal cord tethering • Bowel and bladder problems • Skin problems • Learning disabilities

25. The story of a spina bifida child • Symptoms of hydrocephalus • Abnormal head size • Bulging fontanelles • Irritability • The start of a reflux problem ”Sunsetting” of the eyes

26. The story of a spina bifida child

27. The story of a spina bifida child • Treatment of hydrocephalus • VP shunt Ventricular peritoneal Shunt operation

28. The story of a spina bifida child

29. The story of a spina bifida child B. PARALYSIS OF BOTH LIMBS. There is no active movement of the feet or the knees. The unopposed action of the muscles cause contractures.

30. The story of a spina bifida child • The paralyzed limbs have unmineralized bone tissue. • They are prone to fractures • They are prone to hip dislocation

31. Normal development

32. The story of a spina bifida child • Normal development is compromised in the spina bifida child • They have difficulty to learn balance in sitting. • Likewise balance in standing is much harder to achieve.

33. The story of a spina bifida child • Growing. • Difficulty to stand upright.

34. The story of a spina bifida child • Hard work • Therapy Balance in sitting

35. The story of a spina bifida child • Hard work • Therapy • Devices

36. The story of a spina bifida child • Hard work • Therapy • Walking aids

37. Physical activities such as swimming that don't require the use of your legs are ideal for children with spina bifida • Swimming

38. hydrotherapy Develops upper body strength, • Endurance • Flexibility. • Coordination and balance • Increase their physical health • Increase their mental health. • Body awareness • Positive self-image,

39. hydrotherapy

40. The story of a spina bifida child • Hard work • Therapy • Orthotics • Wheelchairs

41. The story of a spina bifida child 3. Orthopedic deformities

42. The story of a spina bifida child • The postural deformities are exacerbated by the effects of gravity as the child grows

43. The story of a spina bifida child • Prevention is better than cure

44. The story of a spina bifida child

45. The story of a spina bifida child • Growing • The deformities compromise vital functions: • The heart • The lungs

46. The story of a spina bifida child • Growing: 15 year old female Without therapy and external support

47. The story of a spina bifida child

48. The story of a spina bifida child 4.Tethered cord syndrome The spinal cord in the spina bifida child is fixed to surrounding tissues within the spinal column and cannot move freely at the lower end. As the child grows, the spinal column grows, but the spinal cord may not grow at the same rate. This fixation causes tension on the spinal cord and nerves. Produce symptoms like pain, weakness, spasticity, increasing scoliosis, change in urological function.

49. The story of a spina bifida child • Growing • Treatment of Tethered cord syndrome • Surgery • Therapy

50. The story of a spina bifida child 5.Bowel and bladder problems • Severe constipation • Incontinence • Bedwetting • Urinary tract infections