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Cystic Fibrosis Optimism as a coping strategy to maintain quality of life. By Jannie , Miriam, Stephanie and Valdas. Contents. Why Cystic fibrosis ? Mind map Problem area Problem question What is quality of life ? Methodology What’s coming up?. Why Cystic Fibrosis (CF) ?.
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Cystic FibrosisOptimism as a coping strategy to maintain quality of life ByJannie, Miriam, Stephanie and Valdas
Contents • WhyCysticfibrosis? • Mind map • Problem area • Problem question • What is quality of life? • Methodology • What’scoming up?
WhyCysticFibrosis (CF) ? • Life – threateningdiseasewhichoccurs in different countries • Interdisciplinaryapproach • Physiotherapist: respiratory management and exercise • Dietitian: nutritional status (pancreas insufficienty maldigestionand malabsorption) • Nurse : medical care, advocacy, clinical management, support, advice, education, research and management
Interesting topic to put focus on • Have not been discussed that much in each of our countries
Problemarea • No efficientcureavailable → earlydeath • Different daily treatments • Impact on quality of life
Problemquestion • How can we, as health professionals, learn from the patient story to qualify our treatment in an interdisciplinary approach, with a positive impact on the patients’ quality of life?
What is quality of life? • Quality of life is a multidimensional concept that refers to an individual’s overall life satisfaction and total well-being. • 4 dimensions : • Behavioralcompetence • Perceivedquality of life • Environment • Psychologicalwell – being
Methodology • Patient story • Democratic approach (action – competence) • The Health Belief Model • The Dimensions of Health
What’s coming up? • Analysis and discussion • Conclusion