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Von Willebrand Disease

Von Willebrand Disease. By: AJ , Anna Grace , Myra Monsein , Jack Grisham , Jaelin Guillory . Patient point of view:. How do I feel about this disorder? I can’t play certain sports like football, volleyball, and cheer. I can also go to a camp called Camp Wannaklot . .

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Von Willebrand Disease

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  1. Von Willebrand Disease By: AJ , Anna Grace , Myra Monsein , Jack Grisham , Jaelin Guillory

  2. Patient point of view: • How do I feel about this disorder? • I can’t play certain sports like football, volleyball, and cheer. I can also go to a camp called Camp Wannaklot.

  3. Patient point of view (continued) • What am I afraid of? • Not really anything. I just don’t like that I can bleed and bruise easily. • Is there anything to be happy about? • YES!!!! I can go to fun informational camps that teach you how to treat your disorder in a fun way.

  4. Patient point of view(continued) • What will my friends think? • They don’t really think that this will affect me. They also try to be careful with me. • How will they treat me at school? • I don’t think von Willebrand will affect my learning and I can be just like a regular kid.

  5. Genetic research scientist • Scientist know many things about von Willebrand Disease. • They know the symptoms and ways to help the disease and much more. • Von Willebrand Disease is usually inherited • Here are some symptoms and facts.

  6. symptoms • Some of the symptoms are ……. • Large bruises and small minor bumps • Bleeding of the gums • Blood in patients urine

  7. More facts • Stay away from sharp objects. • Can not play rough sports • Danger of internal bleeding. • Blood drawn from butterfly needles.

  8. parent • If you show confidence the patient will too. • There are some upsides about VWD. • You can play soccer. • There are some downsides. • You`re not able to play football.

  9. The symptoms can effect my child. • Some people aren`t able to do gymnastics. • They also aren`t able to play football. • You have to be careful with what you do in life.

  10. You have to stay away from sharp doohickeys so you don`t bleed. • You need to stay away from things that will bruise you.

  11. Doctor • The symptoms of this disorder are the following ……………… • Large bruises and minor bumps • Bleeding of the gums • Bleeding during a bowel movement

  12. How to help this disease • Staying away from sharp objects • Staying away from things that possibly cut the patient • Staying away from sports such as football soccer etc.

  13. Learn more about this disease at • www.nhlbi.nih.gov • www.hog.org • You could also purchase a book called Life with von Willebrand disease etc.

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