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Towards Delivering Disease Support Processes for Patient Empowerment Using Mobile Virtual Communities

Towards Delivering Disease Support Processes for Patient Empowerment Using Mobile Virtual Communities. Bert-Jan van Beijnum, Pravin Pawar, Lamia Elloumi and Hermie Hermens Telemedicine Group University of Twente, Enschede, The Netherlands. . Outline of the Presentation.

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Towards Delivering Disease Support Processes for Patient Empowerment Using Mobile Virtual Communities

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  1. Towards Delivering Disease Support Processesfor Patient Empowerment UsingMobile Virtual Communities Bert-Jan van Beijnum, Pravin Pawar, Lamia Elloumi and Hermie Hermens Telemedicine Group University of Twente, Enschede, The Netherlands.

  2. Outline of the Presentation • Introduction to the BraveHealth Project • Mobile Virtual Communities – Definition and Scope • Existing MVCs for CVD patients – Related Work • Proposed BraveHealth Mobile Virtual Communities (BMVC) • Patient Empowerment Concept and Model • BMVC Specific Organization • BMVC Case-study • Conclusions and Future Work

  3. BraveHealth ProjectPatient Centric Approach for an Integrated, Adaptive, Context-Aware Remote Diagnosis and Management of Cardiovascular Diseases • General Processes: Patientadmittance, treatment andcustomBraveHealth support • ClinicalProcesses: Assessment of patientandtherapeutic procedures in patient treatment • Disease Support Processes: Aimed at patient empowerment usingproposedMVCs

  4. A definition of MVC • Definition of Mobile Virtual Community: “a mobile virtual community is a group of people who interact because of a common interest, problem or task and whose members interact independent of time and space”

  5. Existing MVCs for CVD Patients – Related Work • Few of existing patient 2.0 social networks/systems • MedHelp, DailyStrength, Healia, PatientsLikeMe, IBM Patient Empowerment System, WellSphere, FaceToFaceHealth…. • Following CVD specific facets are addressed • Diet, medication, physical activity, physical exercise, education, disease coping, smoking cessation… • Following CVD specific disease conditions covered • Essential (primary hypertension), Angina pectoris, Acute myocardial infarction, Subsequent myocardial infarction, Heart failure… • Applications/tools available to patients and healthcare professionals • Trackers, posts, articles, health pages, user journals, groups, health blogs, expert answers, encyclopedia, integrated bosignal monitoring & feedback

  6. MVC in BraveHealth - BMVC • A group of persons who use ICT mediated interactions to achieve a specific health related goal and who’s members interact anytime, anywhere • The health related problem must be narrowly scoped • Persons in a group can play different roles e.g. nurse, caregiver, fitness coach • Addresses a well defined CVD lifestyle facet (medication, physical activity/exercise, dieting, …) • Offers a specific type of support (informational, instructional, emotional, appraisal / feedback) for patient empowerment

  7. Explanation of Patient Empowerment Processes* • Informational support • The provision of content for the patients and carers in order to learn and advice about the heart condition • Instrumental support • Behaviours such as spending time and skills with the patients in order to improve their health condition • Emotional support • provision of trust, empathy, love and caring to the patient • Appraisal support • evaluative feedback that encourages patient to follow healthy lifestyle * Tardy C. H., Social Support Measurement, American Journal of Community Psychology

  8. Proposed Model of Patient Empowerment Using MVC

  9. BMVC Specification Organization

  10. BMVC Case-study - Patient Leo Nidas • Leo Nidas is a chronic CVD patient. His current situation is as follows: • He has problems to comply with taking the prescribed medication at the right time. • L. Nidas is now member of a CVD medication support community • He needs to do physical exercises twice a day and has anxiety problems doing so. • L. Nidas recently joined the physical exercise support community. • He is interested in the latest info and knowledge about his specific CVD condition. • L. Nidas has become a member of the CVD information community.

  11. Patient-Centric View of Proposed MVCs

  12. Conclusions and Future Work • The proposed BMVCs are patient-centric • Each community has a well defined support scope and addresses a particular CVD lifestyle facet • Each community has related roles, services, services interaction policies and applications • A member participates in multiple communities – depending on required type of support • A community member takes on an appropriate role/s depending on the expertise • The proposed patient empowerment model sets the BMVCs apart from other communities • Presently we are using existing community engines (e.g. ELGG, DOLPHIN, Facebook) for the realization of BMVCs • Our aim is to have custom implementation of all BMVC specific components – Platform management, Template management, Community management & Individual communities.

  13. Acknowledgements

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