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Capacity & Continuity in Cancer Care

Capacity & Continuity in Cancer Care. People’s experiences of cancer diagnosis and treatment. A collaborative project between University of Victoria and the BC Cancer Agency. Research Team. Dr. Mary Ellen Purkis - UVIC Dr. Carl May - University of Newcastle upon Tyne

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Capacity & Continuity in Cancer Care

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  1. Capacity & Continuity in Cancer Care People’s experiences of cancer diagnosis and treatment

  2. A collaborative project between University of Victoria and the BC Cancer Agency

  3. Research Team • Dr. Mary Ellen Purkis - UVIC • Dr. Carl May - University of Newcastle upon Tyne • Dr. Maxine Mueller - BCCA • Dr. Martha Haylor (on leave) • Ms. Chris Davis - Research Assistant • Ms. Catherine van Mossel - Research Assistant

  4. Project Funding Social Sciences & Humanities Research Council of Canada

  5. Project Overview • Ethnographic Study - interviews, observations, review of documents • Capacity - what capacities do people bring to these circumstances? • Continuity - how do they experience time through these circumstances? • Identity - how does seeking treatment affect their identity?

  6. Accomplishments to Date • 24 Interviews with patients completed • Equitable gender mix • All the women have a diagnosis of breast cancer • The men have a range of cancer diagnoses • Interviews with key informants nearing completion • Observations: Chemotherapy & Radiation Therapy areas have been planned

  7. The next 6 months… • Detailed analysis of transcripts • Writing up ‘segments’ of the experience • Composing an ethnographic account of the experience • The final report • Conference papers developed • Writing for publication • Working with groups of cancer care professionals

  8. Personal experiences: Cancer as ‘continuous’ Cancer is controlling the body So many decisions to be made … Seeking a range of views Organizational experiences: Cancer as ‘episodic’ Cancer can be controlled if … Particular decisions to be made urgently Needing to return to complete the implications of decisions made Some Initial Observations

  9. QUESTIONS?

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