CIL-NET Presents… A National Teleconference & Webinar

1. CIL-NET Presents…A National Teleconference & Webinar Get to the Core of It: Systems Advocacy May 2, 2012 3:00 PM – 4:30 PM EDT Presenter: Chris Hilderbrant CIL-NET, a project of ILRU – Independent Living Research Utilization 0

2. CIL-NET Presents…A National Teleconference & Webinar Get to the Core of It: Systems Advocacy May 2, 2012 3:00 PM – 4:30 PM EDT Presenter: Chris Hilderbrant CIL-NET, a project of ILRU – Independent Living Research Utilization 1

3. Introduction Systems Advocacy is a core service! • What is it? • Can we do it? • Why would we do it? • How do we do it? • What are we going to do?

4. Learning Objectives • Explain the philosophy and role of systems advocacy as a core service that builds community and changes people’s lives. • Describe the five elements of an effective systems advocacy model that, when used together, serve as effective catalysts for change.

5. Learning Objectives • Describe how social media can be used as a highly effective advocacy tool for communication. • Explain strategies for measuring success of a CIL’s systems advocacy efforts. • What exactly is the first thing you’re going to do to get this started?

6. Who is Chris Hilderbrant? • Spinal cord injury at age 14, just before enactment of Americans with Disabilities Act • Started work with Center for Disability Rights in March 1999, just before Olmstead Decision • First jobs were providing direct service, Independent Living Skills Training • Then supervising programs and services • More and more involved in advocacy…

7. Who is Chris Hilderbrant? • Director of Advocacy at CDR (March 2003 – February 2010) • Focus on Systems Advocacy • Local • State • National • Chief Operating Officer (February 2010 – present)

8. Who is Chris Hilderbrant, cont’d. A few of the things I’ve done in my time… • Met with Governors / Shouted down Governors • Opened doors to new relationships • Blocked doors with my wheelchair • Went wheeling in the snow with our Mayor • Been the target of our County Executive • Passed legislation to create new community-based services • Been arrested a dozen or so times • Hundreds of local, state and national media stories

9. Systems Advocacy is a Core Service! • It’s OK to do! • It’s required of all Centers! • It’s a critical means of changing the world! • It’s fun! • Not the same as lobbying • Symbiotic with individual services

10. Why Systems Advocacy? Have you ever had a problem… • Securing accessible, affordable, integrated housing? • Securing needed home care services? • Getting and keeping a job? • Getting into or through public venues, stores, government offices, etc.? • Finding accessible parking?

11. Why Systems Advocacy, cont’d. What CAN YOU do about IT? • Struggle as individuals trying to conform to the demands of an able-bodied world? Or… • Mobilize a community wide effort to remove barriers? • Pick priorities and fight for them? • Educate the community about living with a disability?

12. Why do Systems Advocacy? • We have the obligation to make this world better for others. • We have the privilege to be the voice of many who cannot, yet, be their own. • We are the lucky ones. • We have our “Independent Privileges.”

13. Why do Systems Advocacy, cont’d. • If we don’t speak for ourselves, who does speak for us? • The “Experts” • Parents • Doctors • Unions • Staff, social workers • Service Provider Associations

14. Why do Systems Advocacy, cont’d. 2 What are the “Experts” going to say? • The group home needs more funding? • The staff need more vacation days? • They need to be ‘less burdened’ by person-centered paperwork? • Disabilities are the problem, they need to be cured / eliminated • Quality of life with disability isn’t really all that good, why provide health care?

15. Why do Systems Advocacy, cont’d. 3 • Advocacy is not something “those other people” do • Systems Advocacy and Direct Services are interdependent • Direct services identify the barriers • Systems Advocacy removes the barriers • We need to support one another wherever possible

16. Questions and Answers, Part 1 Questions… Answers…

17. The Systems Advocacy “Pitchfork” • ADAPT’s Pitchfork of Systems Advocacy • In no particular order… • Public Education / Media • Legislative Advocacy • Judicial Process • Executive / Administrative • Direct Action • More prongs on a pitchfork are more effective!

18. The Systems Advocacy “Pitchfork,” cont’d. • Media/Education: Use media to influence public policy, educate public and explain how public policies affect lives of people with disabilities. When general public becomes passionate about our issues, elected officials have less chance of resisting our demands. • Judicial Process: This prong deals with using existing anti-discrimination laws in court to challenge discriminatory practices.

19. The Systems Advocacy “Pitchfork,” cont’d. 2 • Legislative: Influencing elected officials and their staff in order to affect public policy. • Executive / Administrative: Influencing administrative or regulatory entities. • Direct Action: Non-violent direct action, such as civil disobedience, street theater and rallies can be used to bring about systems change. One of the strengths of our movement is the number of people we have who are fiercely committed to creating change. 18

20. How to do Systems Advocacy • Putting the Pitchfork into action • What’s the issue? • What are your goals? • What are your strategies? • How do you know when you’ve won? • What’s your exit strategy? • How do you celebrate your victories?

21. How to do Systems Advocacy, cont’d. • From Organizing for Social Change • A good issue matches most of these criteria: • Result in real improvement • Give people a sense of their own power • Alter the relations of power • Be winnable • Be worthwhile • Be widely felt

22. How to do Systems Advocacy, cont’d. 2 • Be deeply felt • Be easy to understand • Have a clear target • Have a clear time frame that works • Be non-divisive • Build leadership • Lay groundwork for next campaign • Be consistent with your values

23. How to do Systems Advocacy: Saul Alinsky’s Rules for Radicals A sampling of Saul Alinksy’s Rules for Radicals: Rule 2: Never go outside the experience of your people. The result is confusion, fear, and retreat. Rule 6: A good tactic is one your people enjoy. “If your people aren’t having a ball doing it, there is something very wrong with the tactic.” Rule 7: A tactic that drags on for too long becomes a drag. Commitment may become ritualistic as people turn to other issues.

24. How to do Systems Advocacy: Alinsky’s Rules, cont’d. Rule 8: Keep the pressure on. Rule 9: The threat is more terrifying than the thing itself. Rule 11: Pick the target, freeze it, personalize it, polarize it. Don’t try to attack abstract corporations or bureaucracies. Identify a responsible individual. Ignore attempts to shift or spread the blame.

25. How to do Systems Advocacy: McNeilly’s Six Principles Now, something entirely different… McNeilly's six principles are: (partially derived from Sun Tzu – Ancient Chinese military Philosopher) 1. Win All Without Fighting: Achieving the Objective Without Destroying It 2. Avoid Strength, Attack Weakness: Striking Where the Enemy is Most Vulnerable 3. Deception and Foreknowledge: Winning the Information War

26. How to do Systems Advocacy: McNeilly’s Six Principles, cont’d. 4. Speed and Preparation: Moving Swiftly to Overcome Resistance 5. Shaping the Enemy: Preparing the Battlefield 6. Character-Based Leadership: Leading by Example

27. How to do Systems Advocacy: Tips to Remember Some other tips to remember: • Anyone can be a leader • Invest people by using their strengths • The most important victory is the group itself • “Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.” – Margaret Meade

28. Questions & Answers, Part 2

29. Social Media and E-advocacy • Just what the heck is social media? • Facebook • Twitter • LinkedIn • YouTube • Instagram • Others… • Can you really change the world in 140 characters or less?

30. Social Media and E-advocacy, cont’d. • “Just because I am a woman who uses a wheelchair, does not mean anyone should be patting me on the head. That is so 1950s.” • 124 characters, including spaces and quotations. • Debbie Bonomo, Rochester, NY, regarding then presidential candidate, Senator John Edwards

31. Social Media and E-advocacy, cont’d. 2 • Campaign Volunteers directing wheelchair users to inaccessible entrance • Sign language interpreters cancelled • Senator Edwards’ head-pat heard round the world • CDR issued a press release, including the quote from Ms. Bonomo

32. Social Media and E-advocacy, cont’d. 3 • The next day, the local newspaper ran an article about all three of our concerns. • The next day, the local Fox affiliate interviewed us and ran a story during their evening news. • The next day, National Fox cable news ran the story during the evening news with Brit Hume. • The next day, there were articles and responses and blogs all across the nation. • The next day, it was in the Guardian newspaper in the UK!

33. Social Media and E-advocacy, cont’d. 4 • Democrat blogs condemned the story as being fabricated by Republicans • Some editorial boards condemned us for being an overly sensitive culture • Local shock-jocks blasted us, then had us on their show • 124 characters created an international dialogue about the treatment of people with disabilities • And this was before Facebook and Twitter!

34. Social Media and E-advocacy: Facebook Facebook • The Facebook page for the Center for Disability Rights has 4,051 fans as of 4/17/2012 • 1,807,827 Friends of Fans on Facebook • CDR has 1,653 followers on Twitter • Retweets of action alerts • People report complaints to us on Facebook and Twitter

35. Social Media and E-advocacy: Success Story Facebook success story • A number of local reporters are my ‘Facebook friends,’ follow on Twitter, G+ • Posted a status update on a Sunday morning about an issue • Reporter called my cell on her day off and mine, asking for an interview • Generated a news story for the evening on the most watched local channel

36. Social Media and E-advocacy: Twitter Twitter • Tiny bits of information for the short attention span generation, microblog • News propagation • Follow people and they will follow you • Reporters • Politicians • Legislative staffers

37. Social Media and E-advocacy: YouTube • YouTube • Zillions of videos, short and lengthy • Create your own channel, get subscribers • Create your own propaganda • When budgets were stalled, we got creative • Our bill sponsors were on a white stallion • Gov and Lej leaders were three men in a smoke filled room

38. Social Media and E-advocacy: Our Video • Our video advocated for CIL funding • 2,644 views as of 6/4/2010 • Multiple blogs linked to our video • We (comically) portrayed the problem that everyone knew was there • Simplified our issue to be readily understandable • Many views by legislative staff

39. Social Media and E-advocacy: Capwiz • Capwiz and other E-advocacy tools • Quick and easy • High quantity, low quality • Tools are evolving quickly to improve quality of constituent contact • You MUST Remember this… • Social Media is dialogue, reciprocal • It is not your one directional propaganda machine • Engage people, ask questions, answer questions • Say and do interesting things

40. Learning Objective 4 Explain strategies for measuring success of their CIL’s systems advocacy efforts.

41. Why Measure Success? • Some states require systems advocacy successes • Board wants to know • We’re responsible to our consumers and members

42. Measuring Success • Establish attainable goals • Goals need to be in line with community priorities • Quantify what can be quantified • Know your goals! • Monitor progress regularly • Celebrate the victories

43. Questions & Answers Got questions?

44. Contact Chris Hilderbrant childerbrant@cdrnys.org

45. Wrap Up and Evaluation Click the link below now to complete an evaluation of today’s program found at: https://vovici.com/wsb.dll/s/12291g4f580

46. CIL-NET Support for development of this Webinar/teleconference was provided by the U.S. Department of Education, Rehabilitation Services Administration under grant number H132B070002. No official endorsement of the Department of Education should be inferred. Permission is granted for duplication of any portion of this PowerPoint presentation, providing that the following credit is given to the project: Developed as part of the CIL-NET, a program of the IL NET, an ILRU/NCIL/APRIL National Training and Technical Assistance Project.