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eLSe eLearning for Seniors : a personal testimony

eLSe eLearning for Seniors : a personal testimony. Henk Van daele PhD Education Prof. em. Univ. Gent + VUB born 1930 ; retired 1995 FILTER Amsterdam, February 10, 2006. November 1999 : > 1 billion cancer cells. Diagnosis : what the doctor said.

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eLSe eLearning for Seniors : a personal testimony

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  1. eLSeeLearning for Seniors :a personal testimony Henk Van daele PhD Education Prof. em. Univ. Gent + VUB born 1930 ; retired 1995 FILTER Amsterdam, February 10, 2006

  2. November 1999 : > 1 billion cancer cells

  3. Diagnosis : what the doctor said Invasive ductal carcinoma carcinoma ? ductal carcinoma ? invasive ductal carcinoma ? Sentinel lymph node biopsy biopsy ? lymph node biopsy ? sentinel lymph nodebiopsy ?

  4. Treatment 1: surgery • Modified radical mastectomy mastectomy ? radical mastectomy ? modified radical mastectomy ? • Axillary lymph node removal

  5. Treatment 2 • Chemotherapy ? • Radiation therapy ? • Hormonal therapy ? (estrogen positive cells)

  6. Winter 1999-2000 • Start of my new study period : I wanted to know : start of my personal research : • What is cancer ? • What is breast cancer ? • What is male breast cancer ? • Why do men get breast cancer ? • Differences : female versus male breast cancer ? • How should I cope with this illness ? • Oncopsychological aspects (females-males) ?

  7. First result of my research • Publication of my book : Borstkanker met puntjes’ (Amsterdam-Antwerpen, Houtekiet, 2002)

  8. Ongoing results of my research • I am a peer counselor (vrijwilliger-lotgenoot ‘Leven zoals Voorheen’ + ’BorstkankerVereniging NL’ • I continue to study breast cancer (internet, national and international conferences, scientific literature) • I lecture on (male) breast cancer, from the point of view of a patient • I became involved in cancer education and cancer advocacy

  9. Internet : GOOGLE : January 28, 2006 • Borstkanker mannen : 215.000 results (20.09.05 : 95.800) • Male breast cancer : 10.500.000 results (20.09.05 : 5.440.000) • Cancer du sein hommes : 2.810.000 results (20.09.05 : 907.000) • Brustkrebs Männer : 551.000 results (20.09.05 : 295.000) • The number of results is increasing daily !

  10. Mass of information : how to choose ? • Only ‘scientific’ websites : • - Universities : • - Scientific organizations : ex. American Cancer Society • - Cancer hospitals : ex. Memorial Sloan Kettering Cancer Center • - Oncological journals ; Breast cancer journals (with peer review)

  11. Health On the Net • Some websites have a quality label : HON • HON : Health On the Net Foundation (Geneva) • HON Foundation is an NGO in Special Consultative Status with the Economic and Social Council of the United Nations

  12. Conclusions • Thanks to my breast cancer, I have found a very interesting new hobby ! • eLearning has become a daily pastime • Thanks to my BrCa, I have made a lot of new friends (national and international) • Thanks to my BrCa and my relations with fellow sufferers, I feel useful • Studying BrCa= 1 way of coping with BrCa

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