Central American Consortium for Pediatric Burns

1. Central American Consortium for Pediatric Burns October 18-21, 2006

2. Contents

3. Review of Day 1 • Argument for Partnership (Asociación de Hermandad) • Success stories from Nicaragua and Dominican Republic • Group Exercise #1: Developing a Framework for Success • Vision • Mission • Values • Goals/Objectives • Challenges • Group Exercise #2: Definition and methods: • Burn Prevention • Burn Training/Education • Partnership Communication and Leadership • Ongoing Research & Analysis (Evaluation of Outcomes)

4. Review of Day 2 • Recap of Day 1 – Review of Asociación’s Mission, Vision and Values • Presentation – Methods to Evaluate Burn Care Programs • Group Exercise #3: Measuring outcomes and sharing results • Burn Prevention • Burn Training/Education • Partnership Communication and Leadership • Ongoing Research & Analysis (Evaluation of Outcomes) • Funding • Establishing Goals and Objectives • Developing Next Steps

5. Vision • An image or word picture that describes a desired future: An international “asociación de hermandad” that significantly improves the quality and availability of burn treatment, education and prevention for all children, specifically in Central America and the Caribbean

6. Mission • A brief statement that describes what the partnership does or why the partnership exists (purpose): We strive to continuously improve the quality of education and treatment for pediatric burn victims as well as promote awareness of burn prevention throughout Central America and the Caribbean.

7. Values • We have a passion to undertake the challenge of burn care and prevention • We are committed to effective leadership, ongoing initiative and continuous improvement of burn care and prevention • We strive to maintain unity and sensitivity for all members of the association; we value integration, cooperation and collaboration in pursuit of common goals • We pursue ongoing education and continuous improvement of our technical skills • We are committed to ongoing research and evaluation of outcomes • We maintain a high standard of ethics • We value integrity, equitable treatment and respect for burn victims and their families • We value the holistic and collaborative approach to patients (body, mind and spirit) • We have a high value for cultural diversity

8. Goals/Objectives • Establish association leadership that is committed to the vision, mission and values and will work with PFP to accomplish the stated goals/objectives • Establish and maintain focus on vision, mission and values in a manner that impacts our daily activities • Increase collaboration between all members • Promote awareness of the association • Develop active campaigns to educate and prevent • Develop successful fundraising strategies and activities • Define standards/protocols for burn care • Research and evaluation • Improve communication between all members of the association • Develop programs that support and build incentives for burn nurses

9. Proposed Strategy - Burn Prevention • Through a sustainable prevention program based on hard facts, we are looking for a cultural change in attitude that leads to a change in conduct, consciousness and awareness, education and practices. • Identify and research causes/risk factors by age group related to accidental and intentional burns • Prevention campaigns are costly, it will be important to establish the following: • Continuity until we reach our goals • Legal measures or strong regulations • Knowledge of real statistics • National and international alliances

10. Proposed Strategy - Burn Prevention • Measuring the effectiveness of burn campaigns is based on the number of diminished severe burn victims • Requires measuring the number of severe burn victims before and after the campaigns • It could take five years before measurable improvement is evident • Data and information is shared on an annual basis and would include: • Database that tracks burns that have taken place on a daily basis • Information from all countries in the association • Tracking of new laws that the government has implemented regarding burn care and their effectiveness

11. Proposed Strategy - Training/Education • Training/education for Doctors • Provide better training in their country • Establish resident rotations (possible post-grad fellowships) • Distinguish between general practitioners versus specialists • Training/education for Nurses • Establish basic training with opportunity to advance to more expert training (teaching programs) • Make it easier for nurses to visit other units (in other countries) for knowledge and training • Nursing leadership is needed

12. Proposed Strategy - Training/Education • Training/education for burn rehabilitation • Training/education for nutrition • Training/education for social work training and education • Evaluation of Training/Education Effectiveness • Measurements on training education and effectiveness to include: • Retained knowledge through verbal feedback measurement, interactive scenarios and testing; determine what training is being retained and what is not being learned) • Performance measurement on subjects/techniques taught • Measurement of medical incidences (e.g., infections, surgical techniques)

13. Proposed Strategy - Training/Education • Information, shared through email and telemedicine, includes: • Work experience and medical techniques • Facts and knowledge • Opportunities for internships and other methods of training/education (specific types of training for specific countries) • Protocols and standards of care across burn units • Legal advances in all participating countries • Stories and words of humor, morale-building, empathy/sympathy

14. Proposed Strategy - Research Evaluation/Outcomes • Includes: needs assessment, collection of data and standards of acceptance • Establish a research culture • Develop a common system for collecting data • Create a web-based data system/database • Offer awards of excellence as incentive • Develop standardized system of evaluation (by unit?) End Result/Benefits: • By reviewing data, we can determine if we were able to meet our objectives in all burn care areas (medical care, prevention, rehabilitation) • Better positioned to raise funds and apply for grants • A method of evaluation allows us to improve and to establish priorities on where to focus resources

15. Proposed Strategy - Research Evaluation/Outcomes • Outcome indicators to be measured are those valuable to patients and those that indicate the consortium’s progress in meeting its objectives. • Information sharing occurs through a HIPPA compliant website to maintain patient confidentiality and requires: • Password protection • Agreed format for data/information collection (e.g., Access, Excel) • On-line course regarding the protection of patient confidentiality • Dedication to maintaining website • External evaluators (promotes validity of information/data) • Understanding of which information is of most interest to potential donors

16. Communication/Leadership Leadership is a person or organization that has: • Enthusiasm • Responsibility • Vision • Integrity • Communication skills • Commitment Logistics • Strategic plans • Human resources • Definition of means • Public relations • Planning • Organization • Evaluation and follow-up

17. Communication/Leadership • Leadership is demonstrated with: • Vision • Passion • Discipline • Negotiation skills • Teamwork • Design plans • Strategic plan • Operating plan • Financial plan • Train personnel

18. Communication/Leadership • Leadership and communication can be measured through the following methods: • Quantify and effectiveness of programs and services • The association’s progress towards meeting goals/objectives • Team cohesiveness • Program costs vs. results (i.e., leadership’s ability to manage and work within available resources) • The image and public persona of the organization • The sharing of information from leadership provides: • Guidance for everyone within the organization • Empowerment to association members • Greater ease in identifying and addressing issues through timely communication and problem-solving • Ability to approach, evaluate and correct those who have not met assigned responsibilities or goals

19. Funding Considerations • Funding and support can come in the form of dollars, supplies, time, logistics, government help and volunteer involvement/ commitment. • Sources for Raising Money: • Some governments provide money for health services • Philanthropist and business donations • Revenue generators (e.g., Costa Rica has an amusement park that raises proceeds for one of the country’s clinics) • Sponsorship – businesses may sponsor clinics/rooms/beds in exchange for publicity • Funding from the United States (e.g., regions with large Latin American populations), Central America (e.g., PAHO) or International Organizations (e.g., UN, WHO) • Obtain 501(c)(3) statues to become eligible for grants and tax-exempt status; or, have established 501(c)(3) apply for grants on behalf of the organization

20. Provisional Task Force • A provisional task force was established with representation from each organization attending the consortium. Over the next eight months, the task force will work to develop strategies and infrastructure necessary for the association to achieve its goals and objectives. Physicians for Peace will serve as the primary facilitator of the provisional task force. Team members include: