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Welcome to LaCAN s Legislative Advocacy Training

Louisiana Developmental Disabilities Council LaCAN Families Helping Families. Louisiana Developmental Disabilities Council. Advocacy OrganizationFederally Funded and AuthorizedPromotes Systems Change. LaCAN Louisiana Citizens for Action Now! . Grassroots Advocacy Network10 Regional TeamsAdvocates for Community and Family Supports.

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Welcome to LaCAN s Legislative Advocacy Training

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    2. Louisiana Developmental Disabilities Council LaCAN Families Helping Families

    3. Louisiana Developmental Disabilities Council Advocacy Organization Federally Funded and Authorized Promotes Systems Change

    4. LaCAN Louisiana Citizens for Action Now! Grassroots Advocacy Network 10 Regional Teams Advocates for Community and Family Supports

    5. Families Helping Families Family Directed Resource Centers Information and Referral Peer to Peer Support Education and Training

    6. 1988 Institutional System Residential or Facility Based Services

    7. 1988 DD Council Conference Introduced Family Support and Supported Living to Louisiana

    8. LaCAN was created to pass Act 378 and the Community and Family Support Movement was born. “Now that we have all of this paper full of good ideas on the walls…what are we going to do about it?” Mike Vasko, Shreveport Parent

    9. Act 378 of 1989 Calls for the development of a plan for a system of community and family supports and implementation of the plan by the La. Dept. of Health and Hospitals. Specifies that services to persons with developmental disabilities should be responsive to the needs of individuals and their families, rather than fitting people into existing programs. Directs the DD Council to develop the plan based on two guiding principles and lists an array of community and family supports to be made available to families and adults. Includes time frames for the development and implementation of the plan.

    10. GUIDING PRINCIPLES Children, regardless of the severity of their disability, need families and enduring relationships with adults in a nurturing home environment. As with all children, children with developmental disabilities need families and family relationships to develop to their fullest potential.

    11. GUIDING PRINCIPLES Cont’d. Adults with developmental disabilities should be afforded the opportunity to make decisions for themselves and to live in typical homes and communities where they can exercise their full rights and responsibilities as citizens.

    12. Office for Citizens with Developmental Disabilities (OCDD) ACT 378 Services Cash Subsidy $258 per month Children with the most severe disabilities Individual/Family Support Purchase of goods and services, based on need Information and Support Families Helping Families Other Major Services Vocational/Employment Services Early Intervention Assertive Community Treatment Teams State Developmental Centers

    13. Office of Mental Health (OMH) Act 378 Services Cash Subsidy $258 per month Children with serious emotional disturbance Family Support Services Purchase of goods and services,based on need Supported Living Services Other Major Services Psychiatric Rehab. Services (Medicaid) Community Mental Health Centers Housing Resources Crisis Management Services Day programs and Psychosocial Rehab. Programs Hospital Based Services Case Management Assertive Community Treatment Teams

    14. Louisiana Rehabilitation Services (LRS) Act 378 Services Supported Living Services Other Major Services Employment and Training Services Independent Living Services Traumatic Head & Spinal Cord Injury Services Blind Services

    15. Bureau of Community Supports & Services (BCSS) Act 378 Services MR/DD Home and Community Based Waiver Other Major Services Children’s Choice Waiver PCA Waiver Elderly and Disabled Waiver Adult Day Health Care Waiver

    16. Bureau of Health Services Financing (Medicaid) Early, periodic screening, diagnosis and treatment (EPSDT) - Preventative and all medically necessary services for Medicaid eligible children under age 21 including dental, extended home health, personal care services, and eyeglasses. LaCHIP ICFs/MR Nursing Homes

    17. Children’s Special Health Services (CSHS) Specialized Clinic Services

    18. La. Developmental Disabilities Council Act 378 Information & Support Families Helping Families Federation of Families for Children’s Mental Health Supported Living Services Adults with Physical Disabilities

    22. Act 1147 of 2001 Amended Act 378 Reinforced Guiding Principles in Act 378 Expanded populations served to include persons of all ages with disabilities

    23. …..Act 1147 Called for the formation of Disability Services and Supports System Planning Group (DSSS) and a Consumer Task Force (CTF) to develop a proposal to reform the long term support system. This proposal shall be submitted to DHH and to the Senate and House Committees on Health and Welfare.

    24. … Act 1147 Called for DHH and the Governor’s Office on Disability Affairs to apply for a Real Choice Systems Change grant that funds state systems change to promote the design and delivery of home and community-based services that support individuals with a disability or chronic illness to live and participate in their communities.

    25. LaCAN’s 2003 Legislative Agenda New Waiver Slots $250,000 – Families Helping Families Other?

    26. What Can I Do? Visit Legislators - Build Personal Relationships Join LaCAN’s List Serve Respond to Action Alerts Write Letters to Legislators Make Phone Calls Attend Legislative Hearings in Baton Rouge Write to the Newspaper

    27. “The hottest places in hell are reserved for those who, in times of great moral crisis, maintain their neutrality.” Dante

    28. Cowardice asks the question, “Is it safe?” Experience asks the question, “Is it politic?” Vanity asks the question? “Is it popular?” But Conscience asks the question, “Is it right?” And there comes a time when one must take a position that is neither safe, nor politic, nor popular, but it must be made because conscience says that it is right. Martin Luther King, Jr.

    29. “To sin by silence when they should protest makes cowards of men” Lincoln

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