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Professional Advisory Board Canadian Celiac Association PAB Activities 2006

Professional Advisory Board Canadian Celiac Association PAB Activities 2006. Dr. Connie M. Switzer MD, FRCPC, FRCPC Clinical Professor of Medicine University of Alberta, Edmonton, Alberta Chair CCA PAB. Canadian Celiac Association. Mission Statement

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Professional Advisory Board Canadian Celiac Association PAB Activities 2006

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  1. Professional Advisory BoardCanadian Celiac AssociationPAB Activities 2006 Dr. Connie M. Switzer MD, FRCPC, FRCPC Clinical Professor of Medicine University of Alberta, Edmonton, Alberta Chair CCA PAB

  2. Canadian Celiac Association Mission Statement • The CCA is a national organization dedicated to providing service and support to persons with celiac disease and dermatitis herpetiformis through programs of awareness, advocacy, education and research

  3. Role of PAB • Accountable to CCA through BoD • Membership by nomination at the discretion of the BoD on recommendation of PAB • Advisory role to BoD and CCA • Assist BoD and CCA in mandate of promoting wellness of persons with CD & DH • Advocacy role • For pts with CD/DH • For the CCA through variety of contacts • Research role – reviewing grant applications and awards also in facilitating research

  4. Members of Celiac PAB Dietitian Members • Shelley Case, BSc, RD • Mavis Molloy, BSc, M. Ad. Ed., RD • Marion Zarkadas, BSc, MSc Cereal Chemist/Grain Expert • Dr. Vern Burrows C.M., PhD, FAIC, PAg

  5. Members of Celiac PAB Physician Members • Dr. D. Butzner • Dr. M. Rashid • Dr R. Warren • Dr. Connie M. Switzer (Chair) Advisors: • Dr T. Murray, Alexandra Anca BoD Liaison: Jean Eldershaw

  6. PAB – Education & Awareness • >40 - Educational presentations • Local Events • National Conferences & Symposia • International Conferences • Participation in CAG Consensus on Wait times • Media presentations • Many peer reviewed publications including CCHS • Posters at 12th International Celiac Symposium

  7. Role of PAB - Research • Resource experts • Advise CCA on current research directions • Advise CCA: aspects of Research Awards • Dr. J.A. Campbell Research Award • Young Investigator Award • Encourage research initiatives • Advise CCA re: options for research funding • Publication of Canadian Celiac Health Survey • Advise CCA re: innovative approaches to share researchinformation

  8. Canadian Celiac Health Survey • Adult paper now published in “Digestive Diseases and Sciences” • Health survey questionnaire requested by several international research groups • Several abstracts at major meetings • Oral presentations at National CAG Consensus on waiting times related to Celiac disease • Presentation of CCHS at research days and forums for physicians • Numerous citations of CCHS data at several meetings including CAG CDDW 2006

  9. On “Pubmed” round the world “Beautiful paper, long due.  I am pretty sure that this contribution will have a terrific impact on celiac disease awareness. Congratulations to you and all the other authors!”Alessio (Dr Fassano) February 25th, 2007 e-mail to Shelley Case

  10. Celiac disease: Evaluation of the diagnosis and dietary compliance in Canadian children Pediatrics 2005 Dec; 116: e754 - e759 Article available to public at pediatrics.aappublications.org

  11. The impact of a gluten-free diet on adults with coeliac disease: results of a national survey J Hum Nutr Diet 2006 Feb;19:41-49

  12. PAB Projects • “Oats and Celiac Disease – Guidelines for Physicians and Patients” • Review of “Hidden and Dangerous” pamphlet • CCA response to CODEX • Draft review of HC position statement on Oats and Celiac Disease • Lobbying for improved food labelling – you can help too – www.celiac.ca • Pocket dictionary – 2nd printing • “Ask the Expert” column CCA newsletter • Content input “Blood tests for Celiac Disease” • CCA Health Professionals Resource Kit

  13. PAB Advisory Role • Advise the CCA on “pure & uncontaminated oats” • Advise CCA on PAVENA trademark • Review/advise the CCA on information projects • Create guidelines for Celiac Disease Diagnosis and Treatment for provincial medical associations • Review Research grant applications • Young investigator Award • Dr. JA Campbell Award

  14. Celiac Disease Screening Tests: Are They Being Used Appropriately? Kelly E McGowan*, Rachael W McKenna, Martha E Lyon, J Decker Butzner ASG Sept 2005 *deceased *CCA Young Investigator Award Winner 2005

  15. PAB Communication • Liaison with BoD/CCA • Kenn Tuckey • Jean Eldershaw • Jim McCarthy • Meetings • Regular teleconferences - committee work • Annual Meeting • National Conference Toronto 2006 • National Conference Moncton 2007

  16. CCA PAB Summary • In the rear view mirror is 2006: • Busy year • Innovative year • Productive year • Through the front window is 2007: • Many projects in evolution • Look forward with enthusiasm to new challenges and opportunities

  17. Thought for 2007 • “Together……We’re making a difference • Ensemble…..Nous ferons la différence” • Delta Beausejour Hotel….May 27th, 2007

  18. Thank you andSee you in Victoria 2008

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