NDAU/NNAP Collaborators Meeting

1. NDAU/NNAP Collaborators Meeting Neena Modi Professor of Neonatal Medicine Imperial College London Vice President, Science & Research Royal College of Paediatrics & Child Health

2. Newborn care is now visible! • 2003: Department of Health review; • establishment of Neonatal Networks • 2006: National Neonatal Audit Programme established • 2007: National Audit Office report “Caring for Vulnerable Babies: The reorganisation of neonatal services in England” • 2007: Neonatal Data Analysis Unit established • 2008: Neonatal Taskforce • 2009: Neonatal Toolkit • 2010: NICE Quality Standards for Neonatal Specialist Care • 2011: National Neonatal Audit Programme funded to 2014

3. Newborn care is leading the way • National organisation of delivery • National professionally developed dataset • National electronic data capture at the point of care, by clinical staff • National quality standards, first wave • National audit

4. The National Neonatal Audit Programme • Lead by the Royal College of Paediatrics & Child Health • Commissioned by the Healthcare Quality Improvement Partnership • Awarded following a national tendering process • Managed by a Project Board, chaired by Dr Michael Watkinson, Consultant Neonatologist, Birmingham Heartlands Hospital • Administered by Kim Davis

5. RCPCH Science & Research Department

6. What is the Neonatal Data Analysis Unit • An independent academic unit, launched in 2007, led by a Steering Board • An initiative that aims to improve electronic data quality and develop their use to improve clinical care and service planning, and for health services and clinical research • Builds on the principal that data should be captured once and should be of high quality

7. NDAU Steering Board • Jane Abbott Head of Programmes, Bliss • Peter Brocklehurst Professor of Perinatal Epidemiology & Director, National Perinatal Epidemiology Unit • University of Oxford • Kate Costeloe Professor of Paediatrics, • Queen Mary University of London • Elizabeth Draper Professor of Perinatal Epidemiology, University of Leicester, Chair, British Association of Perinatal Medicine Data Group • Jacquie Kemp London Perinatal Director • Azeem Majeed Professor of Primary Care & Public Health, • Imperial College London • Neena Modi (Chair) Professor of Neonatal Medicine, • Imperial College London • Andrew Wilkinson Professor of Paediatrics, University of Oxford

9. What the NDAU provides • Consistency in data management across networks • Population-based mortality and morbidity surveillance • Benchmarking • Case-mix adjusted outcomes • Complex outputs • Support for quality improvement programmes • Support for clinical and health services research • Development of new audits and initiatives

10. NHS Trusts (Caldicott Guardian and Lead Clinician Approval) NDAU Team Eugene Statnikov, Shalini Santhakumaran, Sridevi Nagarajan, Brad Manktelow, Richard Colquhoun Neonatal Data Royal College of Paediatrics & Child Health National Perinatal Epidemiology Unit National Patient Safety Agency Health Protection Agency British Association of Perinatal Medicine NHS Information Centre “NNAP” National Neonatal Audit Programme “MBRRACE-UK” (Mothers & Babies: Reducing Risk through Audits & Confidential Enquiries across the UK) “Matching Michigan” Reducing line associated bloodstream infection “CHILP” Children’s Infection Linkage Project Development of core dataset to define levels of neonatal care Maternity dataset development support National Patient Safety Agency Health Protection Agency Health Protection Agency National Patient Safety Agency National Patient Safety Agency National Patient Safety Agency National Perinatal Epidemiology Unit Royal College of Paediatrics & Child Health National Neonatal Database Neonatal Data Analysis Unit Neonatal Data Analysis Unit Neonatal Data Analysis Unit Neonatal Data Analysis Unit Neonatal Data Analysis Unit Neonatal Data Analysis Unit National Neonatal Database NDAU: NHS activities

11. NHS Trusts Caldicott Guardian Approval NHS Trust R&D Approval Neonatal Data Analysis Unit National Neonatal Database Research Ethics Approval National Information Governance Board, Ethics & Confidentiality Committee Approval National Neonatal Database Project Specific Research Ethics Approval Improving data quality The NDAU team E Statnikov, S Nagarajan, S SanthakumaranProf Neena Modi Reliability of NHS two-year outcome assessments Hilary Wong, Prof Deborah Ashby, Dr F Cowan, Dr A Huertas Facilitating clinical trials; NEC surveill’nce Cheryl Battersby, Prof Kate Costeloe Linkage to NHS Records Programme Jo Murray, Prof Azeem Majeed Heath Economics Dimitrios Rothivis, Prof Stavros Petrou Parent Involvement Victoria Foster, Jane Abbott, Prof Alys Young A Preterm Growth Reference Prof Tim Cole, Prof Neena Modi Neonatal Data Analysis Unit Neonatal Data Analysis Unit Neonatal Data Analysis Unit Neonatal Data Analysis Unit Neonatal Data Analysis Unit Neonatal Data Analysis Unit Neonatal Data Analysis Unit NDAU: Research activities

12. Acknowledgements Contributing Neonatal Units around the country, staff, parents and patients The NNAP and NDAU teams Collaborators, supporters and funders