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Explore the impact of religion and spirituality on illness in palliative care settings, examining research findings and practical implications. Understand the importance of religious literacy in fostering patient well-being and ethical understanding.
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This material is not subject of recreation or representation without the author’s permission. Religious Literacy in Palliative Care Panagiotis Pentaris Goldsmiths, university of london
Content • Religion and Spirituality • Religion and Illness • Research design • Results • Conclusions
Religious Literacy Knowledge of, and ability to understand, religion • Knowledge and Understanding • Skills and Abilities
Spiritual care • Religion and belief • Spirituality • Well-being • Ethical understanding • Psychosocial support • Etc.
Religion and Illness • Three functions for the patient: • Provides a theoretical framework • Provides practical resources for coping with illness • Provides hope.
Research design • 3 Hospices in London, UK • 4 months, 160 hours Participant observation • 40 hours Ethnography • 72 informal interviews • Participants (observation): 4 male, 5 female • Recruitment: Open call with limitations • Supplementary of a larger study
Religion and belief in the space Present Absent Signs of religious belief Icons Crucifixes Prayer rooms • Chapels • Quiet rooms (?)
Secular organizations and organizational foundations • 2013 – 3 hospices assigned new CEOs – declaring secular attitude and leadership. • 2013 – becoming neutral • Changing logos • Removing signs of religion and belief (i.e. crucifixes from the entrance) • Leadership Health Care Professionals in the front line
Attitudes towards Religion and Belief in Society • Habit • Choice • Imposed framework of meaning • Misunderstood • Weakness • Sign of mortality • Form of intolerance • Unstable ‘I think our society in this country has become quite secular, whereas religion used to be very much the centre of people’s world; that has changed throughout the 20th century and into the 21st century.’
Attitudes towards Religion and Belief in Palliative and Hospice Care • Diversity & Equality – Social Policies • Misunderstood • Sets boundaries in care • Viewed as Christianity • Representation of a patient
Religious Literacy in Palliative Care Knowledge & Understanding Skills & Abilities ‘Christianly comfortable’ Chaplaincy Feelings of conflict Uncomfortable with language Part of bureaucratic processes Religious tension ‘out-of-role’ Resilience • Religion lacks importance • Only manifests in rural areas • Overview of diversity • Chaplains are responsible • Symbolism • Not religion, but spirituality • Culture & tradition
Conclusions • Lack of RL in Palliative Care • Religious understanding of illness is interpreted as a ‘ticked box’ • Religious sensitive practices are entitled to the professional’s abilities in question • Health Care sector is in the process of secularizing now • Lack of social policies informed by research
Thank you Panagiotis Pentaris PhD Researcher Faiths & Civil Society Unit Goldsmiths, University of London p.pentaris@gold.ac.uk Lead Coordinator FaithXchange Research Network Goldsmiths, University of London http://www.gold.ac.uk/faithsunit/network/