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Non-Profit Assignment Disease Specific Health Group

Non-Profit Assignment Disease Specific Health Group. Yan(Simon) Gao Max Hernandez-Toso Yimin(Mimi) Jiang Debby Keller Jason Knight. Industry Overview. The basic value proposition of the websites: Reliable, comprehensive information about the disease

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Non-Profit Assignment Disease Specific Health Group

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  1. Non-Profit AssignmentDisease Specific Health Group Yan(Simon) Gao Max Hernandez-Toso Yimin(Mimi) Jiang Debby Keller Jason Knight

  2. Industry Overview • The basic value proposition of the websites: • Reliable, comprehensive information about the disease • Resources for treatment, research, and support • Outlets to volunteer & donate to the cause …through an easy-to-use interface. • No shareholders in non-profit corporations • Organizations remain viable on the basis of donations Nonprofit Disease Specific Health

  3. Major Players Nonprofit Disease Specific Health

  4. Overview of Pages • Type of Disease • Prevention and Treatment Options • Research and statistics General Information Patient Services • Free Health Materials • Online Directory for Medical Resources • Services and Resource Get Involved • Take action • Planed giving and donation • Relay for life Nonprofit Disease Specific Health

  5. A Sample Front Page www.americanheart.org Nonprofit Disease Specific Health

  6. Basics • People visit the site for the following INTERESTS: • To look for general or lower level information (patient and their families, general public) • To look for detailed information or higher level information (researchers and health care providers) • To donate money or to check the organizational goals, program and performance (donors and general public) • While visiting, perform the following OPERATIONS: • Information search • Donations by credit card or by contacting representatives Nonprofit Disease Specific Health

  7. Consumers • People suffering from the specific disease • People with a family member, friend, loved one suffering from the specific disease • Philanthropists (current and potential donators) • General public who want information • Research professionals -“…services to health care providers, patients, member organizations, educators, researchers, counselors and the general public.” -The Sickle Cell Disease Assoc. of America (http://www.sicklecelldisease.org) Nonprofit Disease Specific Health

  8. Strategies to Attract Customers • Celebrity Endorsement • Jerry Lewis Telethon for Muscular Dystrophy Association • Partnerships with Hospitals & Schools • Community Events (With online Info/Sign-Up) • Walk America (March of Dimes) • Tour de Cure (American Diabetes Assoc) • Light the Night Walk (Leukemia Society of America) • Great American Smoke Out (American Lung Association) Nonprofit Disease Specific Health

  9. Strategies to Attract Customers (cont.) Provide organization information for potential donors • Annual Report, Financial Statements,  Posted Meetings • Publishing/Distribution of Educational Materials (all) • Technical Training and Assistance (Sickle Cell) • Research Support (all) • National Convention and Workshops (all) • Scholarships (all) Nonprofit Disease Specific Health

  10. Sample Online Donation Forms Donation Payment www.mdusa.com User Registration www.cancer.org Nonprofit Disease Specific Health

  11. Value Additions • Partnerships with Major Merchants • 5-15% of purchase benefits organization • (Muscular Dystrophy, March of Dimes) • Current Journal and News Articles • Search engines/Online directory of medical resources • Online secure sites for immediate donations • Research publications • Disease Information center • Definition, Prevention, Risk Factors, Detection/Symptoms, Treatment, and Survivorship) Nonprofit Disease Specific Health

  12. Value Additions (cont.) • Plan Gifts (for will or trust) • American Diabetes Association • Statistical facts & figures • (example from the American Cancer Society at right) • Calendar of events and posted meetings across regions • Health and social relative issues • Tobacco control on the American Lung Association page • Multilingual-versions of the website site Nonprofit Disease Specific Health

  13. Strategies to Retain Customers • Site Customization (American Diabetes Foundation) • Periodic funding opportunities for research professionals (all) • Customers are committing to an on-going relationship • “Ask the Expert” service (Muscular Dystrophy Association) • If customers find the expert responses useful, they will come back when more questions arise • Suggestion: Email newsletter (with unsubscribe option) • Targeted information for customer if they entered that info on the online form • Updates on new information/features on the site • Reminders to donate around tax time Nonprofit Disease Specific Health

  14. Attracting, Retaining, and Adding Value: • BIGGEST COMPONENT IS THE REPUTATION OF THE MAJOR PLAYERS! • Organizations follow AHRQ guidelines • Only display and promote material aligned with standardized protocols of care Nonprofit Disease Specific Health

  15. Conclusion • Explosion of disease and health information on the Internet • In 1998, 17 million people sought health information from the Internet, and the number was expected to double within 2 years(Source: GartnerGroup, 1998) • Many sites are not credible or regulated • Value added features will be a pivotal role in the survival of non-profit disease specific sites Nonprofit Disease Specific Health

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