Community Research in Cancer: “CORICA”

1. Community Research in Cancer: “CORICA” CPCRN – Los Angeles Roshan Bastani, Antronette Yancey, Annette Maxwell, Beth Glenn, William McCarthy, Ritesh Mistry, Barbara Berman, Weng Kee Wong, Leo Morales, Jennifer Tsui University of California, Los Angeles (UCLA)

2. CPCRN Build Research Infrastructure in Community Vaccine Preventable Cancers Tobacco Control Obesity Prevention Cancer Early-Detection DISCOVERY DISSEMINATION

3. Infrastructure • UCLA Center of Excellence in the Elimination of Health Disparities (CDC REACH US, 2007-2012) • Asian American Network for Cancer Awareness Research & Training (AANCART), NCI funded Community Networks Program, 2000-2010. • Lance Armstrong Survivorship Center (2006-2010) • Prevention Research Center, CDC (1999-2009)

4. Community Partner LA County Dept. of Health Services Academic Partner UCLA School of Public Health Community Investigator Team Representatives from health & human services organizations • WORKING I Planning and Pilot Phase 2005-08 • WORKING II Full Intervention Trial Phase • WORKING III Dissemination Phase WORKING ProjectWorking Out Regularly Keeps Individuals Nurtured and Going WORKING I: 2005-08; WORKING II: 2008-13, PI: YanceyNCMHD/NIH R24

5. WORKING II Study Design Recruitment 60 sites, 25 workers/site Health and Human Services Agencies Baseline Assessment • Organizational Change Intervention: • Policy changes • Program champions • Photovoice • PA Competition, etc. Intervention 30 sites, 750 workers Control 30 sites, 750 workers • Outcomes: • Objective biometrics, step test • Self-reported practices, etc. • Worksite environmental audits Follow up 6, 12, 18 months

6. Recent Success Story • North East Valley Health Corporation (Debra Rosen et al.) receives HRSA Grant: Patient Navigator Outreach and Chronic Disease Prevention Program • Breast, Cervix, CRC screening and F/U • 2 year project, $1 Million (Sept 2008) • UCLA CPCRN role: navigator training and project evaluation

7. Dissemination Grant Submissions • Community Dissemination of An Evidence-based CRC screening Intervention (Maxwell) • Among Filipino Americans, Test 4 dissemination strategies for a CRC screening intervention proven effective in prior randomized trial among • Engaging Filipino American CBOs in Tobacco Control (Maxwell) • Test 4 dissemination strategies to increase usage of the California Smokers Helpline, an evidence-based cessation approach • Disseminating and Implementing Tobacco Prevention Education or Deaf and Hard of Hearing Youth (Berman) • Test 2 dissemination strategies for a first ever evidence-based tobacco prevention curriculum, Hands Off Tobacco! An Anti-Tobacco Program for Deaf Youth

8. HPV VaccineInformed Decision-Making Pilot • LA County Office of Women’s Health: Prevention Matters! Program 1-800 Health Hotline (est. 2002): • Health education and link callers to prevention services • Seven languages: Spanish, English, Mandarin, Cantonese, Korean, Vietnamese, Armenian • 10,000 callers/year: low-income, limited English proficiency, 92% uninsured • Capitalize on this infrastructure for HPV Vaccine education, tracking of access & uptake in county, including predictors

9. HPV VaccineInformed Decision-Making Pilot • Survey: • Conduct at least 100 interviews per language: English, Spanish, Cantonese, Mandarin, Korean, Armenian • Informed Decision-Making Intervention: • Pilot test brief telephone and mail intervention • link callers to services

10. Capacity Building • Annual Symposia: • Cancer Disparities 2005 • Obesity 2006 • Vaccine Preventable Cancers 2007 • Lessons Learned from Tobacco Control 2008 • Using What Works Trainings: • Participants: CBOs, Health Depts., Funding agency (Beach Cities Health Dept), grant applicants • Follow-up technical assistance • Cancer 101 (Promotores) • CBPR (African American 5-a-day) • Using secondary data and GIS for needs assessments (NBCCEDP)

12. UCLA School of Public Health Jonsson Comprehensive Cancer Center Division of Cancer Prevention and Control Research CORICA UCLA CPCRN Examples of Activities Examples of Community Partners Community-based Organizations Los Angeles County Department of Public Health California Department of Public Health NCI’s Cancer Information Service American Cancer Society California’s Comprehensive Cancer Control Plan National Breast and Cervical Cancer Early Detection Program (NBCCEDP) CDC’s Prevention Research Program (PRC) Multiple Community-based Organizations N=25+ Tri-Counties Cancer Detection Partnership Partnered for Progress Northeast Valley Health Corporation Community Clinics Association of Los Angeles Cabrillo Herald Cancer Association Clinica Monsenor Oscar A. Romero Clínicas Camino del Real Cabrillo Village Cooperative Housing Rancho Sespe Cooperative Housing Asian Pacific Healthcare Venture Filipino American Service Group, Inc. South Asian Network To Help Everyone Clinic California Food Policy Advocates Esperanza Community Housing Corporation Worksite Wellness Los Angeles • Academic Institutions Pilot Projects • Clinica Romero Community Needs Assessment Survey • Farm Workers Health Survey • Worksite and Employee Wellness Survey • Colorectal Cancer Health Education Adaptation for South Asians • Using Telephone Health Hot-line for HPV Vaccine Promotion • Breast and Cervical Cancer Screening in Mixtecos • Assess No Smoking Policy at Farm Worker Housing • Dissemination of the 5-A’s of Smoking Cessation • Training and Capacity Building • UCLA Center for Excellence in the Elimination of Health Disparities (REACH US) • Use of Evidence-based Strategies (Using What Works) • Technical Assistance • Annual Symposia • Research Projects • Cancer screening (breast, cervix, CRC, hep B, HPV) • Tobacco Control • Obesity (nutrition, physical activity) • Survivorship • Policy, economics, outcomes

13. Center of Excellence for the Elimination ofDisparities(REACH US, 2007-2012, CDC) UCLA: Yancey, Bastani, McCarthy, Maxwell, Glenn, Mistry, Guinyard, Mojica • LA County Dept. of Public Health: • Simon, Gonzalez, • Harding, Gunzenhauser, Fielding • Dissemination: • evidence- and practice-based strategies • initial focus on obesity prevention • future years: tobacco, screening • Promote organizational level change • Worksites, churches, schools, clinics • Community Organizations: • LA Urban League • Worksite Wellness LA • CA Black Women’s Health Project • Asian Pacific Health Care Venture • Latino Health Access • Esperanza Housing Corp.

14. Center of Excellence for the Elimination of Disparities (REACH US, 2007-2012, CDC) • Multiple ethnic groups • Low-income Latinos, African Americans and Asians • Build infrastructure and capacity • strengthen relationships, provide training to primary community partners • Community partners train their partners and implement strategies

15. Cancer Screening • Latino Prostate Cancer screening: informed decision-making • Hepatitis B screening among KoreanChurch Attendees (UW) • Follow-up of Breast Abnormalities in Low-Income Korean American Women • Colorectal Cancer Screening among Filipino Americans • BreastCancer Educational Programs in Deaf Women • Decision Making About Genetic Testing for Breast Cancer Risk among minority women

16. Tobacco • School-based Anti-Tobacco Programs for Deaf/HH Youth • Secondary Analysis of California Tobacco Use Prevention Education Data • California Tobacco Use Prevention Education • Pathways of How Socioeconomic Context Affects Teen Smoking

17. Obesity • Organizational Change for Obesity Prevention: The WORKING (Working Out Regularly Keeps Individuals Nurtured and Growing) Study • Instant Recess in Stadiums and Schools with the Professional Athletes Council • Systematic Observation of Physical Activity in Worksite Stairs (SOPAWS) • Healthy Eating And Active Communities (HEAC) Project • Comparison of Healthy and Unhealthy Weight-related Ads in Communities of Differing Race/Ethnicity and SES

18. Publishing Data from CBOInitiated Projects • Pausa para tu salud: Integration of exercise breaks into workplace organizational routine may reduce weight and waistlines • Preventing Chronic Disease, 2008 Jan; 5 (1), A12 • Lara A, Yancey AK, Tapia-Conyer R, Flores Y, Kuri-Morales P, Mistry R, Subirats E, McCarthy WJ. • Adapting a 1% or Less Milk Campaign for a Hispanic/Latino Population: The Adelante Con Leche Semi-descremada 1% Experience • American Journal of Health Promotion, In Press • Hinkell AJ, Mistry R, McCarthy WJ, Yancey AK • Tobacco Use among South Asians: Results of a Community-University Collaboration • Ethnicity & Health, In Press • Glenn B, Surani Z, Chawla N, Bastani R • Rates and sociodemographic predictors of cancer screening among South Asians • Journal of Community Health, In Press • Glenn B, Bastani R, Surani Z, Chawla, N

19. Community Seed Projects • LA County Department of Public Health Office of Women’s • Use Telephone Hotline to collect data about HPV vaccine and pilot test education intervention. • Cabrillo Village Housing Cooperative • Conduct health needs assessment in farm worker housing communities. • Clinicas del Camino Real • Enhance outreach to promote cancer screenings in Spanish-speaking low-income families. • Cabrillo Economic Development Corporation • Assess the impact and functioning of a no-smoking policy at affordable housing complexes. • H/LATEN: Hispanic/Latino American Tobacco Education Network and NCI/CIS • Dissemination and Evaluation of the 5-A’s of Tobacco Cessation. • Partnered for Progress: Los Angeles County Cancer Detection Partnership • Assess cancer prevention activities within health and social service organization worksites. • Tri-County Cancer Detection Project • Expand cancer prevention and control outreach to Mixteco population. • Clinica Romero • Design a needs assessment tool and conduct data collection in surrounding neighborhoods. • South Asian Network • Adapt and disseminate materials for colorectal cancer screening in South Asians. • Los Angeles Community Garden Council • Design survey to assess how community gardens impact fruits & vegetables access and consumption.