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” Ancient cities and their reflection to todays world  ” 2010-2012

” Ancient cities and their reflection to todays world  ” 2010-2012. Lithuanian multiple sclerosis union. Was founded in 2000 with the help of the Danish Multiple Sclerosis Society.

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” Ancient cities and their reflection to todays world  ” 2010-2012

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  1. ”Ancient cities and their reflection to todays world ” 2010-2012

  2. Lithuanian multiple sclerosis union • Was founded in 2000 with the help of the Danish Multiple Sclerosis Society. • Unite appr.1000 people but represent the interests of almost 4000 affected people and are helping to solve their problems • From 2002 the oorganization is a member of the European MS Platform. was founded in 2000 with the help of the Danish Multiple Sclerosis Society. • From 2007 we became a member of Euro carer association. • The Organization also is one of the initiator in the founding of the Baltic MS Alliance

  3. People with multiple sclerosis • What is my diagnosis… • I did not realise other people have the same diagnosis… • Doctors did not....

  4. Multiple sclerosis is a fundamental neurological illness with a high morbidity, especially among people at a young age of employable morbidity 20-40 years of age. An attempt is of made to conceal the illness from not only employers but also those close to the person. Disability is rapid and severe.

  5. Four stage model • Out the flat • what is wrong with me – information about the disease • Interesting world • Support group activities • Friends, events • We are citizens • We have right • We have medical needs • Re-organisation or creation of the care system

  6. Areas of activity include social and psychological consultation representation of patient interests in all state institutions implementation of national and international projects

  7. MS Societies – the beginning .... • Lectures • Discussions • Support group meetings • Parties • No accountancy • No money • But a lot of enthusiasm

  8. Management issues in MS MS diagnosed healthy Psychosocial issues Cognitive function impairment DMT disability Symptom management rehabilitation handicap

  9. Multiple sclerosis (MS) • is one of the most common diseases of the central nervous system. • Today over 2,000,000 people around the world have MS.

  10. EMSP Members • • Austria • • Belarus • • Belgium • • Bosnia-Herzegovina • Bulgaria • • Croatia • • Czech Republic • • Denmark • • Estonia • • Finland • • France • • Germany • • Greece • • Hungary • • Iceland• Ireland • • Italy • Latvia • Lithuania • Luxembourg • Malta • Netherlands • Norway • Poland • Portugal • Romania • Russia • Serbia • Slovakia • Slovenia • Spain • Sweden • Switzerland • UK

  11. MS Barometer 2009: overall results

  12. Focus on society Kersten et al 2000

  13. The place of multiple sclerosis in the European Union policy PRESS conference in the Parliament 2009

  14. Our main Principles To promote Quality of Life for People with MS which draws together the interests of national MS societies worldwide and other community in implementation activities of a global projects.

  15. Celebration DAY without MS ( on the boat)

  16. Summer camp in Estonia

  17. Lithuanian group performance

  18. Last year Lithuania Millennium celebration events. We have also prepared a special program.

  19. Our exhibition of works

  20. We are organizing seminars in non-traditional environments-at the restaurants

  21. …. and in nature

  22. One of the learning project • Partnerinės institucijos: • Švietimo irinformacijoscentras Stylida-Graikija Nacionalinis Kapodastriano Universitetas,Geologijos fakultetas Atenai-Graikija Aplinkosaugos švietimokolegija Nikosia-Kipras

  23. First presentation in Greece

  24. with colleagues in Nicosia

  25. At the Archaeological Museum

  26. With partners and guests in Lithuania

  27. My presentation of the Lisbon Convention for Persons with Disabilities in the publication in Greece.

  28. At European Patients forum in London

  29. In Brussels in the European Parliament (information hour for MS)

  30. As always with friends from other Baltic countries.

  31. European carer group working in Sweden seminar.

  32. Pleasant meeting in Estonia celebrating Estonian MS societies 20th anniversary.

  33. It is fun to celebrate for our cooperation.

  34. Estonians like to surprise...

  35. There was a global campaign from New York, flying in the night over the Tallinn.

  36. Said goodbye to the December 3 meeting in Riga.

  37. Everything is in place TIME FOR ACTION IS NOW

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