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Fatigue in Transverse Myelitis. Kerry Mutch NMO Advanced Nurse Practitioner Walton Centre Foundation Trust Liverpool. Fatigue after Lunch. Benefits of Drinking Water. You can’t live without it! Reduces Fatigue No calories Stops headaches Reduces urine infections
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Fatigue in Transverse Myelitis Kerry Mutch NMO Advanced Nurse Practitioner Walton Centre Foundation Trust Liverpool
Benefits of Drinking Water • You can’t live without it! • Reduces Fatigue • No calories • Stops headaches • Reduces urine infections • Helps relieve constipation • Gives skin a healthy glow • Gives energy • It’s Free • Reduces Fatigue
Impact of Fatigue • Affects quality of life and functional ability • Adversely affects • ability to self manage symptoms • ability to cope • mood and self esteem • Can aggravate other TM symptoms Depression Fatigue
Fatigue in NMO Fatigue affects different people in different ways There are many factors that contribute to fatigue Person with TM
Fatigue Types in TM • Primary: related to disease process • Probably related to the underlying pathologic alterations in TM such as demyelination, inflammation and axonal injury • The inability of a muscle or group of muscles to sustain the required or expected force • Secondary: associated with disease related factors • Walking difficulties • Sleep disturbance • Pain • Spasms • Bladder symptoms • Breathing difficulties • ‘Normal’ activity related fatigue
Trigger Factors of Fatigue • Not drinking water • Poor diet – wrong food • Poor Posture seating/bedding • Poor sleep patterns • Temperature heat/cold • Infection/Virus • Emotions mood/stress • Other medical conditions • Anaemia • Doing too much • Excessive exertion • De-conditioning • Taking insufficient breaks • Medications
Medications and Fatigue Medications side-effects that can cause fatigue; • Analgesics • Anti spasticity • Anti convulsants • Anti hypertensives • Anti depressants • Anti histamines
Modified Fatigue Impact Scale 61 people with NMO completed MFIS • Because of my fatigue during the past 4 weeks.... NeverRarelySometimesOftenalways
Total Impact of Fatigue Physical Fatigue Cognitive Fatigue Psycho social Fatigue
Priciples of Managing Fatigue Ensure the best levels of energyUsing Energy Available in Most is available Productive Way
Using Energy in Most Effective Way • Planning – Efficient use of energy supplies means more can be achieved. • Prioritising – Better to complete smaller tasks than try everything and complete nothing. • Pacing – more beneficial rather than continuing to point of exhaustion and being forced to rest. • Delegating– Many people feel guilty about asking people to do jobs they previously did. Motto- I Can if I Plan
Energy Effectiveness Strategies • Increase your fluid intake!! • Make life as easy as possible for yourself • Use labour saving equipment • Do things differently • Organise work area to avoid unnecessary bending, reaching or walking • Activity and exercise benefits • Relaxation, deep breathing, yoga, pilates • Sleep patterns and routine
For the Lion To Wake up Drink More Water Thank you