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Effectively Utilizing Data Collection: A Case Study of a Functioning System. Robert Bartelt & Kristen Gay Silver Springs – Martin Luther School. Design. Improve. Measure. Assess. Where to Start. Agency Values Frame Questions Work with Others Leaders Direct Care Staff
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Effectively Utilizing Data Collection: A Case Study of a Functioning System Robert Bartelt &Kristen Gay Silver Springs – Martin Luther School
Design Improve Measure Assess Where to Start • Agency Values • Frame Questions • Work with Others • Leaders • Direct Care Staff • Families and Children • Pilot
Data Collection What you get out of your data is only as good as what you put in….
Data Collection Process • Choosing What Data to Collect • Clinically Meaningful • Does the data add to your understanding of how clients are doing? • Will your findings help you effect change in your program?
Data Collection Process • Choosing What Data to Collect • User Friendly for Staff • Who is going to be collecting the data? • Are measures easy to understand? • How much training is required? • How many measures do you need? • How much time is available for data collection?
Data Collection Process • Choosing What Data to Collect • “Crunchable” • Does the measure provide information that is meaningful for individual analysis? • Does the measure provide information that is meaningful for aggregate analysis? • Do you have/how will you get the tools to manage the data?
Data Collection Process • Choosing What Data to Collect • Information Required from Third Parties • What are the requirements from third parties? • Can your data collection system be set up so as to satisfy these requirements? • How will the data represent your agency and services?
Data Collection Process • Choosing What Data to Collect • Is the data collection system flexible? • When a managed care company or a county calls to request data on only “their” children, can you do that easily? • Can you respond to new requirements without expending a lot of additional resources?
Data Collection Process • Choosing What Data to Collect • Do you want to engage in benchmarking? • Other similar organizations • MCO expectations • County expectations • National norms
Examples of Data to Collect • Behavioral Rating Scales • Frequencies/Counts (i.e., Lengths of Stay) • Patterns of Diagnostic Groups/Presenting Problems • Demographics of Population • Contacts with Families • Critical Incidents • Satisfaction Surveys • Aftercare Data • County, MCO, etc. Requests
Design Measure Improve Assess Evolution of Data Collection • As the agency and/or service provided becomes more sophisticated, you want to know more information. • Start collecting data • Ask new questions • What other data will you want to collect? • Do you have the flexibility to ask more questions and gather more data?
A Look at a Specific Outcome • Restraints • A high-risk activity • Upfront goal to reduce the use of restraints • What data is needed by internal committees: • How do you provide the most meaningful data to internal committees? • How frequently will the data be required? • What variables are important?
Restraint Reduction • Collection of Data • What do you want to know? • Frequency of Restraints • Child • Staff Who Initiates • Time of Day • Length of Restraint • Result (injury of child, injury of staff) • Children with multiple restraints • Type of restraint used
Restraint Reduction Flowchart: Developing a data collection system
Data Input List Manager
Data Output Restraint Data
Restraint Reduction • Different Types of Reports • Trends Over Time
Restraint Reduction • Different Types of Reports • By Unit
Restraint Reduction • Different Types of Reports • Restraints by Type of Restraint
Restraint Reduction • Different Types of Reports • Restraints by Child
Restraint Reduction • Different Types of Reports • Restraints and Injury
Restraint Reduction • Different Types of Reports • Children with Frequent Restraints
Reporting to Third Parties • HCSIS reporting
Reporting to Third Parties • Reports to MCOs
Reporting to Third Parties • Reports to MCOs
Reporting to Third Parties • Reports to MCOs
Reporting to Third Parties • Reports to MCOs
Responding to Requests by Funders • Dilemma: • Multiple expectations for reporting • Various requirements re data structure • Example: • Specific request from DHS to produce structured case notes
Measuring Symptom Reduction: An Example of the Use of Individual vs. Aggregate Data Youth Outcomes Questionnaire (YOQ) • 64-item standardized measure • Total Score and Six Subscales • Intrapersonal Distress • Somatic • Interpersonal Relations • Social Problems • Behavioral Dysfunction • Critical Items
Measuring Symptom Reduction Youth Outcomes Questionnaire (YOQ) Individual Results
Measuring Symptom Reduction Individual Results
Measuring Symptom Reduction: A Look at One Child - Two Measures
Measuring Symptom Reduction • YOQ – Aggregate Results • Of the children discharged in 2008-2009, 42% showed a decrease in YOQ scores from the second administration of the YOQ until the time they were discharged. • Children with higher YOQ Discharge Scores (suggesting more clinical symptoms) have a higher numbers of restraints.
Development of a New Measure: Family Work • What do we want to know? • How often do families have therapy sessions? • Do families see therapy sessions as helpful? • Do children participate in the sessions? • Do meetings address issues that are important to the family? • How can we measure it?
Design Improve Measure Assess Development of a New Measure: Family Work • Design • Measure • Assess • Improve
Discharge and Aftercare Data • At Discharge • Restrictiveness of Living Scale (ROLES) • Aftercare Survey • Interviews occur at four points in time: • 3-6 months post discharge • 1 year post discharge • 2 years post discharge • 3 years post discharge
At Discharge • The Restrictiveness of Living Scale (ROLES) 85% were discharged to a home setting
Aftercare • The intent of the Aftercare Study is to look at whether children are: • At Home • Still in less restrictive setting • Disruptions in placement • In School • Suspensions • Expulsions • Out of Trouble • Reported Drug/Alcohol Use • Involvement with Legal System • Healthy • Have regular medical and dental appointments