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Disabled people and their families in the health and disability system

Disabled people and their families in the health and disability system. From passive patients to engaged consumers to decision-making citizens. Paul Gibson Human Rights Commission. Matariki. Time for storytelling and learning Time when disabled people were strongest

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Disabled people and their families in the health and disability system

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  1. Disabled people and their families in the health and disability system • From passive patients to engaged consumers to decision-making citizens Paul Gibson Human Rights Commission

  2. Matariki • Time for storytelling and learning • Time when disabled people were strongest • Maui and his grandmother, muri ranga whenua • The footstepsof Hape

  3. The story of our rights • Other rights instruments • HRC and HDC • HRC: promote, protect and monitor rights • Making a complaint • Development of the CRPD

  4. Stories celebrating our CRPD success • New Zealand as a whole • All of our roles • Disabled peoples achievement • Generating a national conversation • Kiwis with ID are global leaders • The Nobel Peace Prize?

  5. Acknowledging the worst of discrimination • Kimberley South Africa; racial discrimination, ‘apartheid’ • Kimberley Western Australia; race, children, ‘stolen generations’ • Kimberly New Zealand; ‘psychopaedic’, ‘institutionalisation’ • A challenging national conversation: Sorry

  6. Health services and disability services • Health: clinician/patient • Disability: Citizen/society • Consumer engagement vs choice andcontrol

  7. The future of disability support • From needs assessment to self assessment to self defining good life • Recognising services supports and organisations that meet CRPD standard

  8. As Matariki ends • Know me before you judge me • Nothing about us, without us • Who we are is OK, what happens to us is not • Ka po, ka ao, ka awatea

  9. Waiata • The lunatics are taking over the asylum • And the blind are leading the blind • TinoRangatiratanga • We are no longer • Out of sight, out of mind

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