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W E L C O M E. Down’s Syndrome Association Of Tamilnadu. Mathru Mandir. believes in the possibilities. Do You ?. Introduction. Center for individuals with Down syndrome in India Located in Chennai city Staffed by multi-disciplinary team headed by Rekha Ramachandran.
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W E L C O M E Down’s Syndrome Association Of Tamilnadu
Mathru Mandir believes in the possibilities. Do You?
Introduction • Center for individuals with Down syndrome in India • Located in Chennai city • Staffed by multi-disciplinary team headed by Rekha Ramachandran Established in 1984 with 6 children Registered as Down Syndrome Association of Tamilnadu in Feb 1998 More than 200 individuals supported in 2004 www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Registered under Sec. 10 of the T.N Societies Registration Act1975 Reg. No. 48/1998 Registered under Foreign Contribution Regulation Act 1976 Reg. No 075900924 Dated: 25th Sep. 2003 Donation received are tax exempted under section 80G of IT Act 1976 www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Down Syndrome is the most common and readily identifiable chromosomal condition associated with mental retardation. It is caused by a chromosomal abnormality for some unexplained reason, an accident in cell development in 47 instead of the usual 46 chromosomes. This changes the orderly development of the body and brain. In most cases the diagnosis of Down Syndrome is made shortly after birth. The incidence is very high and about 1 in every 800 to 1000 live births is born with Down Syndrome
Need • No exclusive services in India available for individuals with Down Syndrome • Existing services only for mentally challenged • Differences in these conditions not widely known • Extended Family participation – not just parents is important in India www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Aim • To bring about positive changes • To provide service oriented programs • To gain widespread acceptance by family and society • And most importantly, to help individuals attain their maximum potential www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Rekha Ramachandran – President and Family counselor 2 physical therapists 2 Occupational therapists 1 speech therapist 1 special educator 1 vocational therapist 4 trained staff for self-help and academics Team • 2 creative movement therapists • 1 clinical psychologist • 1 technical weaver and helper • 4 sub-staff and • Security personnel www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Process • Early intervention • Functional academics • First phase - Classroom training • Second phase - Vocational training • Extra curricular activities www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Early intervention • Open to children from the age of 3 months • Responsibilities include • Counseling for individuals, parents and extended family members • Initial support services • Referrals to medical professionals as needed www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Aims to: • Foster healthy relationships between parents and school • Develop a positive approach to learning in a secure and loving environment • Chief services • Physiotherapy • Speech therapy • Occupational therapy www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Classroom education • For children in elementary school • Uses Curriculum tailored to individual needs • Curriculum matches individual’s learning pace • Delivered through the topic or thematic approach to learning • Early years, through structured approach to play • Aims to: • Provide learning experiences, skills and attitudes through participation • Provide an environment where children feel valued and accepted www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Pre-vocational • Evaluation of student’s potential to work • Done by several means such as checklists on vocational competencies • Student exposed to work samples in classroom • Rate of production and quality of work evaluated by maintenance of production records • Student compared to him/ herself over a period or multiple periods www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Vocational training • For children moving from elementary to secondary school • Primary focus on vocational aspects as compared to the more traditional academics such as reading, or mathematics • Includes three phases • Pre-vocational • Vocational adjustment or try-out and • Placement www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Adjustment, placement • Vocational adjustment • Preliminary information from pre-vocational phase used • Student actually placed on a job in school itself as initial placement and evaluated • Placement Opportunity for: • Competitive employment on part-time basis • Job placements in sheltered workshops or • Self employment www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Vocation • Weaving • Special looms designed by experts to suit individuals www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Baking • Production of cookies, buns, biscuits and confectionery • Superior quality and variety resulted in constant demand www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Fruit preparation • Preserved juices and jams www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Catering and spice processing • Preparation of snacks and masalas of very high quality • Others • Plates and cups using bio-graded leaves • Bottle preparation by moulding plastic granules www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Extra-curricular activities • Outings to the zoo, farmhouses & Group Excursion to Different States • Participation in sports events and cultural programs www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Success stories 8th World Down Syndrome Congress Singapore 2004 Inaugural Dance by:- SANDHYA RAO, REVATHI TYAGARAJAN, BABLI RAMACHANDRAN
Our Greatest Achievement 2004 Saw the Admission of 260 Infants into regular schools www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
Our Sports Achievement SPECIAL OLYMPICS INTERNATIONALHELD IN DUBLIN AUGUST 2003N. VIDYAVATI WON A BRONZE MEDAL FOR SWIMMING S. RAMESH –BRONZEWORLD SWIMMING COMPETITION IN DURBAN ‘OCT 2004’ www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
‘I have a name and I'm proud of it’ www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
“The most important aspect of having a child with DOWN SYNDROME is acceptance – by both parents and society. In Mathru Mandir, we take pride in stating that we have not only kept families together, we have made parents happily accept their child as they would any other child. This has been our biggest success and we not only have families in Chennai but from all over India and the Middle East” • Rekha Ramachandran www.downsyndromefederationofindia.com / Email:- mathrumandir@vsnl.net
T H A N K Y O U Down’s Syndrome Association Of Tamilnadu No. 2, Madangopal Street, Abiramapuram, Chennai - 600 018. Tel : 2498 6824 www.downsyndromefederationofindia.com Email:- mathrumandir@vsnl.net