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“Communication at End-of-Life” for Personal Support Workers in Long-Term Care Module 1

“Communication at End-of-Life” for Personal Support Workers in Long-Term Care Module 1. Goal for Module 1. BEST PRACTICE at the Bedside Beliefs, Ideas, Biases, and Stored Knowledge Concepts and Content Integration Application. What is Hospice Palliative Care?.

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“Communication at End-of-Life” for Personal Support Workers in Long-Term Care Module 1

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  1. “Communication at End-of-Life” for Personal Support Workers in Long-Term CareModule 1

  2. Goal for Module 1 BEST PRACTICE at the Bedside • Beliefs, Ideas, Biases, and Stored Knowledge • Concepts and Content • Integration • Application

  3. What is Hospice Palliative Care? • Review working definitions of: • Hospice Palliative Care (HPC) • End of Life (EOL) Care • Review the CHPCA Model to Guide Palliative Care. • Reflect on the Philosophy of Hospice Palliative Care and End of Life Care. • Discuss myths and misconceptions about care.

  4. What is Hospice Palliative Care? • Hospice Palliative Care means providing comfort when someone is actively dying. • Hospice Palliative Care starts when someone is close to dying and ends at death. • Hospice Palliative Care is for people dying with cancer. • Telling residents they are dying takes away their hopes. • Receiving Hospice Palliative Care means you will die sooner. • Hospice Palliative Care begins with a doctor’s order.

  5. Personal Definitions Small Group Activity: On a post-it note, create a definition for each of these words. Share your definitions with others at your table, come to an agreement on a definition with your group, and post it on the wall. DYING DEAD DEATH LIVING

  6. http://www.youtube.com/watch?v=-SzA-kWB8-s

  7. Not Just the Dying! The philosophy and principles of Hospice Palliative Care may apply to patient populations other than the dying. Hospice Palliative Care programs may play a secondary role in addressing the needs of these groups. http://www.chpca.net/norms

  8. When Is It Appropriate? Anyone living with or at risk of developing a life –threatening situation: • Due to any diagnosis • With any prognosis • Regardless of age • At any time that they have unmet expectations or needs and are prepared to accept care http://www.chpca.net/norms

  9. Hospice Palliative Care… Aims to address: • Physical, psychological, social, spiritual, and practical expectations and needs • Loss, grief, and bereavement • Preparation for, and management of self–determined life closure and the dying process. Canadian Hospice Palliative Care Association (2013). A Model to Guide Hospice Palliative Care. Ottawa, ON: Canadian Hospice Palliative Care Association. Also available at: http://www.chpca.net/media/319547/norms-of-practice-eng-web.pdf

  10. Hospice Palliative Care… Aims to address: • Suffering, a state of distress associated with events that threaten the intactness of a person and are accompanied by a perceived lack of options for coping. Cassell (1991)

  11. Hospice Palliative Care… Aims to address: • The quality of living and dying – sense of individual well being, experiences that are meaningful and valuable to the individual and their ability to have such experiences.

  12. Meet Betty – Domain Game Our residents play with the cards they are dealt

  13. Daily Care Activities… What PSW activities would support a resident experiencing needs in the various domains of holistic care needs?

  14. Assessment for the Palliative Care Philosophy • Would you be surprised if this resident died in the next 3 months? 6 months? • Have there been hospital admissions recently? • Are there distressing physical and psychological symptoms? • What are the goals of care? What is the resident’s/family’s understanding of the disease processes, prognosis, and treatment options? Quality Palliative Care in Long Term Care Alliance www.palliativealliance.ca

  15. Assessment for the Palliative Care Philosophy • Are there significant social and spiritual concerns affecting daily life? • Has the resident and their family participated in advance care planning? • Has resuscitation been discussed recently? Quality Palliative Care in Long Term Care Alliance www.palliativealliance.ca

  16. What is Hospice Palliative Care? • Hospice Palliative Care means providing comfort when someone is actively dying. • Hospice Palliative Care starts when someone is close to dying and ends at death. • Hospice Palliative Care is for people dying with cancer. • Telling residents they are dying takes away their hopes. • Receiving Hospice Palliative Care means you will die sooner. • Hospice Palliative Care begins with a doctor’s order.

  17. Hospice Palliative Care Is: • NOT a person/resident/patient • NOT a place • NOT a program

  18. Hospice Palliative Care Is: • Provided to a person/resident/patient • Provided in a place • Provided by health care practitioners, program, service etc.

  19. Hospice Palliative Care Is: A philosophy of care People are not palliative! The CARE they would benefit from is PALLIATIVE!

  20. Palliative Care is Committed to: “…healing, and that is something different from curing. Healing is to make a person whole, to relieve suffering and to give the individual a sense of who he or she is as a person.” “Palliative care is person-centered, not disease-centered.” Dr. Larry Librach

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