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Open-Sourcing the Research Exchange Database (RexDB)

Learn about the need for integrated data management, the vision of RexDB, its past, present, and future as an open-source project, and the significance of open-source approaches in autism research.

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Open-Sourcing the Research Exchange Database (RexDB)

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  1. Open-Sourcing the Research Exchange Database (RexDB)How to package a successful data management platform extensively used in autism research as an open-source project • Leon Rozenblit, JD, PhD • Founder/CEO, Prometheus Research, LLC

  2. Presenter Disclosures Leon Rozenblit (1) The following personal financial relationships with commercial interests relevant to this presentation existed during the past 12 months: • Employment by commercial entity, Prometheus Research, LLC • Stock ownership, Prometheus Research, LLC

  3. Objectives You will learn about… • The need for integrated data management • The RexDB Vision • The RexDB Project (Past, Present and Future) • The significance of Open Source approaches

  4. There is a significant need for integrated data managementin biomedical and behavioral research

  5. What’s the Problem?

  6. Primary Functions of an iDMS (RexDB) • Acquire electronic data from patients and clinical staff • Collect data from a wide range of outside sources • Curate data via configurable data quality and consistency checks • Explore and query data through focused data sets and powerful search tools

  7. The Benefits of Using RexDB for Integrated Data Management Your Data is… • CLEAN with easy to use dual data-entry screens and customized data quality reports • ORGANIZED and labeled for easy, repeated use in different research endeavors • SAFE with frequent back-ups and comprehensive logging of every change • SECURE with compliance with local and federal regulations (e.g., HIC/IRB, HIPAA, HITECH) • ACCESSIBLE by statistical packages, analysis tools, and even remote collaborators • and PERSISTENT by ensuring research data sticks around after a lab member leaves

  8. The History of RexDB Data Collection

  9. The Project Roadmap • Work with stakeholders to define requirements for an integrated data management system to support autism and related disorder research • Package existing components into a modular, open-source RexDB system • Evaluate the new system at four research sites • Create a vibrant open-source community around the platform

  10. Where are we now?

  11. The Value of Open Source Approaches • Wider user base - Broader feedback • Free to modify - More extensibility • Free to distribute - Better sharing through a common standard

  12. What challenges have we faced? • Refactoring existing code base and eliminating architectural debt is time-consuming • Developing the ability for user-based customization and configurability requires in-depth design • Balancing the requirements of our current client-base and general Open Source users is not trivial • Designing general solutions for new domains

  13. Other Possible Applications of RexDB

  14. Want to Learn More? RexDB.org

  15. Acknowledgments • Charles Tirrell • David Voccola • Owen McGettrick • Naralys Sinanis • Clark Evans • Frank Farach

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