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Rapid Response Research for HIV Policy: Lessons from California's Policy Research Centers

This research highlights the lessons learned from California's Collaborative HIV/AIDS Policy Research Centers in providing timely research to inform HIV policy decision-making. It emphasizes the importance of anticipating upcoming policy questions, facilitating dialogue between researchers and policy stakeholders, and balancing research and policy environment demands.

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Rapid Response Research for HIV Policy: Lessons from California's Policy Research Centers

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  1. Rapid response research to inform HIV policy decision-making: Lessons learned from California's Collaborative HIV/AIDS Policy Research Centers I.W. Holloway, W.T. Steward, J. Mortimer, P. Curtis, D. Van Gorden, A Leibowitz, S. Morin, C. Mulhern-Pearson, A. Donnelly, A.J. King, A. Fox, C. Pulsipher, D. Evans, G. Lemp International AIDS Conference Durban, South Africa July 20, 2016

  2. Background • California HIV/AIDS Research Program previously funded specific policy research projects • Challenge of timeliness • Policy environment moves quickly • Processes of funding new project and scaling up research moves more slowly • Research data sometimes were not available to inform policy decisions IAC, Durban, South Africa

  3. Background • UCSF permitted to alter one project’s deliverables to develop simulations of Ryan White HIV/AIDS Program funding • Through dialog with policy stakeholders, able to inform decisions for the 2006 reauthorization of program • Led to the idea for standing policy research centers IAC, Durban, South Africa

  4. California HIV/AIDS Policy Centers • The Centers will bring the most relevant and timely evidence to bear on HIV/AIDS policy in order to develop and maintain efficient, accessible, state-of-the-art programs and services for the diverse populations of Californians living with or at risk for HIV/AIDS. IAC, Durban, South Africa

  5. The Centers • Northern California • UCSF • San Francisco AIDS Foundation • Project Inform • Southern California • UCLA • AIDS Project Los Angeles • Los Angeles LGBT Center IAC, Durban, South Africa

  6. Policy Research Advisory Committee • Identify, prioritize key HIV/AIDS issues for which academic research could assist in stronger HIV policy/program decisions in CA; • Develop research questions to recommend to the Executive Committee of the Policy Research Centers; and  • Identify individuals interested in participating in the development of research projects taken on by the policy centers IAC, Durban, South Africa

  7. Policy Research Advisory Committee • Two meetings in northern and southern California each year with diverse stakeholders • Bring together a broad range of HIV/AIDS expertise to identify critical HIV/AIDS issues that would benefit from targeted research in order to strengthen California's response to HIV/AIDS. IAC, Durban, South Africa

  8. IAC, Durban, South Africa

  9. Case Example: PrEP Access • PrEP identified as important strategy to prevent new infections • PRAC helped us identify access to prevention and treatment services as an important issue for YMSM, especially YMSM of color • Community and academic partners worked together to develop and field a survey of YMSM on PrEP awareness, willingness, uptake and barriers IAC, Durban, South Africa

  10. Case Example: PrEP Access • We found high willingness, but significant barriers including lack of knowledge and concerns about affordability (particularly among YMSM of color) • How did the information inform the advocacy? • Policy impact included the PrEP affordability program and bill to include information about PrEP in HIV post-test counseling  IAC, Durban, South Africa

  11. Lessons Learned • Balancing research and policy environment demands • Rapid response research ideally anticipates upcoming policy questions • Leaves more time to complete a project • Particularly important if research design is likely to require IRB review IAC, Durban, South Africa

  12. Lessons Learned • Facilitating dialog between researchers and policy stakeholders • Each field: Unique expertise, unique communication demands • Research partners: craft scientific questions and research design based on concerns coming from policy stakeholders • Community partners: facilitate delivery of research findings back to policy stakeholders. IAC, Durban, South Africa

  13. Thank you!Funding Acknowledgements: Each partner of the HIV/AIDS Policy Research Centers is supported by a grant from the California HIV/AIDS ProgramUCLA: RP15-LA-007 UCSF: RP11-SF-021 AIDS Project Los Angeles/Los Angeles LGBT Center: RP15-LA-008/9 San Francisco AIDS Foundation /Project Inform: RP11-SFAF-023 IAC, Durban, South Africa

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