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Activity and participation after spinal cord injury: State-of-the-art report

Explore expert recommendations for measuring activity and participation in individuals with spinal cord injuries. Understand the importance of these outcomes, limitations of existing tools, and insights for future research. Discover gaps in current measures, ongoing developments, and suggestions for advancing research in this field.

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Activity and participation after spinal cord injury: State-of-the-art report

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  1. Activity and participation after spinal cord injury: State-of-the-art report Philip M. Ullrich, PhD; Ann M. Spungen, EdD; Darryn Atkinson, PT; Charles H. Bombardier, PhD; Yuying Chen, MD, PhD; Norma A. Erosa, MS; Shirley Groer, PhD; Lisa Ottomanelli, PhD; David S. Tulsky, PhD

  2. Study Aim • Summarize expert recommendations for researchers measuring activity and participation among persons with spinal cord injuries and disorders (SCI/D). • Relevance • Activity and participation are critical outcomes for persons with SCI/D but existing measurement tools have significant limitations. • Future research could benefit from a synthesis of expert opinion on activity and participation measurement and research recommendations.

  3. Methods • In January 2010, SCI/D rehabilitation researchers and clinicians participated in State-of-the-Art Conference on Outcome Measures in Rehabilitation. • Using their knowledge base and expert opinion, participants formulated recommendations for researchers. • Participants evaluated instruments currently being used or developed to measure outcomes after SCI/D.

  4. Results • Measures of activity and participation and factors influencing activity and participation are reviewed and critiqued. • Gaps in available measures are described, measures in development are discussed, and suggestions for future research are made.

  5. Conclusions • Investigators should become aware of the flaws in available measures in order to make informed decisions for specific projects. • Many measures are available that can serve as indices of activity, participation, and influential factors until the next generation of instruments is developed and disseminated.

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