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Supporting self management for people with diabetes Lifting the words from the page. Dr Simon Eaton Consultant Diabetologist, Northumbria Healthcare Clinical Lead for Long Term Conditions, NHS North East simon.eaton@nhct.nhs.uk. All-Party Parliamentary Group for Diabetes, March 9 th 2010.
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Supporting self management for people with diabetes Lifting the words from the page Dr Simon Eaton Consultant Diabetologist, Northumbria Healthcare Clinical Lead for Long Term Conditions, NHS North East simon.eaton@nhct.nhs.uk All-Party Parliamentary Group for Diabetes, March 9th 2010
Dilemma • Numbers of people with diabetes rising ++ • Costs attributable to diabetes rising +++ • Burden of diabetes is huge • Much of the burden is preventable • Not just about access to new technologies • Decisions that people with diabetes make every minute of every day… …& the role that health services play in this
Pathways and Journeys… ‘Pathways’ – e.g. at diagnosis, treating foot ulcer, pregnancy Consultations with Healthcare Professionals Avoidable admissions or unplanned care People with diabetes ‘self-manage’ >99% of the time
Quality & Productivity… ‘Pathways’ – e.g. at diagnosis, treating foot ulcer, pregnancy Consultations with Healthcare Professionals Avoidable admissions or unplanned care People with diabetes ‘self-manage’ >99% of the time
…support people to develop confidence and competence in managing the challenges of living with their condition(s), in order to have a better quality of life and better clinical outcomes. This will also enable more effective and appropriate use of health and social care resources. High Quality Care should… Long term conditions clinical leads network September 2009
‘We do that already…’ HCC National Patient Survey
‘We do that already…’ Picker Institute, 2007
Lifting the words from the page Diabetes Year of Care Programme Pilot sites: Calderdale and Kirklees PCT Tower Hamlets PCT NHS North of Tyne Diabetes
Organisational processes HCP committed to partnership working Engaged, informed patient Commissioning - The foundation ‘Prepared’ for Consultation Supporting self-management Information/ Structured education Emotional & psychological support
Preparing? - why bother? I enjoy doing the clinic a lot more now… working with them rather than at them I could focus on the important things for me and get help Took the ‘cork out of the bottle’ People feel more relaxed Time to read [results] and think about what to raise… you know what was coming It’s absolutely 100% better for me and for the patients
IT: clinical record of care planning & able to feed data into commissioning Contact numbers and safety netting Send test results beforehand Organisational processes ‘Prepared’ for Consultation Consultation skills / attitudes HCP committed to partnership working Engaged, informed patient Information/ Structured education Integrated, multi-disciplinary team & expertise Senior buy-in & local champions to support & role model Emotional & psychological support Commissioning - The foundation Develop market to meet current and future needs Identify and fulfil needs Procured time for consultations, training, & IT Quality assure and measure Establish & publicise menu of care Supporting self-management
Lifting the words from the page • Huge burden of diabetes still to be addressed • Lack of support for a vital resource – the person with diabetes • Need planned, proactive, anticipatory services • Designed around needs of users, not systems • Support people to make informed and personally relevant decisions • Confidence and skills to manage challenges of living with their condition(s) • Effective measures of progress & improvement
simon.eaton@nhct.nhs.ukyearofcare@diabetes.org.ukwww.diabetes.nhs.uksimon.eaton@nhct.nhs.ukyearofcare@diabetes.org.ukwww.diabetes.nhs.uk
IT: clinical record of care planning & able to feed data into commissioning Contact numbers and safety netting Send test results beforehand Organisational processes ‘Prepared’ for Consultation Consultation skills / attitudes HCP committed to partnership working Engaged, informed patient Information/ Structured education Integrated, multi-disciplinary team & expertise Senior buy-in & local champions to support & role model Emotional & psychological support Commissioning - The foundation Develop market to meet current and future needs Identify and fulfil needs Procured time for consultations, training, & IT Quality assure and measure Establish & publicise menu of care Supporting self-management