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Explore the complexities of healthcare in Brazil through real-life stories navigating the public SUS system and private health insurance. Dive into the moral, financial, and legal questions surrounding high-cost medication, aging population, and judicialization of health. Witness the struggle of families facing medical crises and the role of the court in these difficult decisions.
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O Direito à Saude no Cotidiano:FamiliasNavegando o SUS e a SaúdeSuplementar no Brasil Erik Bähre
High-costmedication • SUS hospitalandprivatelypaidmedicine. • Treatment (±18 months): from R7500,- to R130.000,-? • Cost are notonlytechnologyrelated, but alsorelatedtoregulations of globalmarkets. • Whopays? A financial, political, andmoral question. • Importance of insecurityforpatient.
Two cases of Plano de Saúde • ‘My life has stopped’. • Cancelation of contract. • Caring for mother: divorce and daughter. • ‘I might kill my mother’. • 24/12 hour home care. • Too close to help professionally.
Navigatingbureaucraciesand translating suffering • ‘Show the judge the photographs! Theycanseemymother is suffering!’ • A youngmotherstrugglingfor her daughter. • Moraldamageandnegotiating court decision.
What is judicialisation of health in everyday life? • Relatedtoactuarial risk calculations: the price of flexibility. • Relatedtoageingpopulation. • Crucialrole of DefensoriaPúblicafor SUS ánd Plano de Saúdefor translating experiencesforlegal setting. • A technical term but sometimes also a moral statement: defining responsibility.