ONLINE CONFERENCE

1. ONLINE CONFERENCE music STIMULATION AS ALZHEIMER’S DISEASE THERAPY: BENEFITS ON INFORMAL CAREGIVERS Monsonís-Payá, I., Garcés, J., Durá. E., Vidal, P.

2. INDEX • Introduction • Social and institutional context • Progress Project Alzheimer • Objectives • Target groups • Training modules and intergenerational activities • Data collection • Evaluation and findings • Conclusion

3. Introduction • To discuss an explanatory research designed to contribute to the maintenance and reconstruction of social ties through activities focused on dependency and care for people with Alzheimer’s disease. • Research question: The extent to which assistance to people with AD contributes to unburden informal caregivers • Progress programme (VS/2011/162): “Alzheimer: TremplinIntergénérationneld’InsertionSociale et Professionnelle”: (VP/2010/007/0129).

4. Social and institutional context • Specific medical attention • Respite units • Public senior residences • “Law on Promotion of Personal Autonomy and Care for Dependent Persons” • To guarantee informal caregivers’ rights in both psychological and financial areas. Alzheimer 7.7 %

5. Social and institutional context • Current scenario • urgent public interventions to assist people with a disease are increasingly required • Womenwithout professional qualification are in charge of taking care of their relatives • This contributes to burden these informal caregivers physically, psychologically and financially

6. Social and institutional context The indirect impact of lack of support and training

7. Progress Project Alzheimer • Objective • Increasing theprovision of social and health assistance to people with AD and their informal caregivers • Respond to the social demand of labour inclusion of young people and the increasing risk of exclusion of women without qualification or with difficulties to access to labour field.

8. Progress Project Alzheimer • Target groups

9. Progress Project Alzheimer • Training modules content • Introduction to gerontology • Introduction to Alzheimer’s disease • Informal Care and informal caregivers • Support and services for Alzheimer’s disease • Individual approach to AD: communication, music therapy and orientation to reality General training Specialized training

10. Progress Project Alzheimer • Intergenerational and practical activities • Visits to patients and their caregivers • 2h30min each session. • Music therapy as a key activity for cognitivestimulation

11. Data collection • Non-experimental design: pre-test and post-test comparisons (without comparison group) and post-test analysis (including context analysis). • Quantitative techniques: questionnaires • Qualitative techniques: interviews and participant observation • Context analysis:using both primary and secondary information resources. • Not statistically, but representatively

12. Evaluation and findings • Regarding informal caregivers • Reduced psychological and social burden • Preventing social relationship breakdown • Regarding trainees • Increasedskills to access labour field. • Provide further access to other training programmes. • Increase willingness to work with AD’s patients

13. Conclusion • Overall stakeholder/participant satisfaction • Recommendation: lower duration and increase number of training sessions. • Approximation between informal caregivers and people in risk of social and labor exclusion.

14. Thank you Irene Monsonís: irene.monsonis@uv.es Jorge Garcés: jordi.garces@uv.es Estrella Durá: estrella.dura@uv.es Patricia Vidal: patricia.vidal@uv.es