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INAHTA Working Group 3. Annual meeting, Rio de Janeiro, June 2011. WG 3 Topics 2010 - 11. Policies on involvement with stakeholders Involvement of consumers in HTA Measurement of HTA influence Influence of HTAs on disinvestment decisions
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INAHTA Working Group 3 Annual meeting, Rio de Janeiro, June 2011
WG 3 Topics 2010 - 11 • Policies on involvement with stakeholders • Involvement of consumers in HTA • Measurement of HTA influence • Influence of HTAs on disinvestment decisions • Influences on decisions reached on technologies considered by HTAs
Stakeholders survey • Survey on INAHTA agencies’ policies on involvement with stakeholders • Discussed at 2010 AM • Report finalized September 2010, available on website
Consumers in HTA survey • Origin - approach in 2009 from HTAi Interest Group on Patient and Citizens in HTA • 2010 survey a follow - up to that undertaken in 2005 • Included two new items suggested by HTAi Group • 33 responses, thanks to AETS, AHTA, AHTAPol, ASERNIP-S, AVALIA-T, CADTH, CAHIAQ, CDE, CENETEC, CNHTA, CVZ, DACEHTA, DAHTA, DECIT, DHTA, Finohta, G-BA, GÖG, HAS, HIQA, HIS, HITAP, ICTAHC, IHE, LBI - HTA , MAHTAS, NETSCC, NHSC, NOKC, OSTEBA, SBU, UVT, VASPVT. • Report in May, included in agenda papers
Consumers in HTA survey - findings • 50% of agencies involve consumers, large majority intend to do so in the future (similar to 2005) • Consumer/ patient organizations most common type of contact, also individuals for large minority of agencies • Time & resource constraints, rapid reviews, projects in confidence, present challenges for wider involvement.
Consumers in HTA survey – findings (2) • Higher proportion of agencies in 2010 used consumer input to data analysis or drafting sections of HTA reports • Increase in provision of summaries of HTA reports, and in involving consumers in dissemination. • Positive attitude to consumers in HTA, level of involvement relatively limited, little change from the 2005 findings
HTA influence survey • Preliminary report is in meeting papers • Based on 19 responses by end May from: AHTA, ASERNIP-S, AVALIA-T, CADTH, CDE, CNHTA, DACEHTA, Finohta, G-BA, GÖG, HIQA, HIS, HITAP, NHSC, NOKC, MAHTAS, OSTEBA, SBU, VATAP • Further responses sought, to include in final report!
HTA influence survey - findings • 74% of agencies measure influence of at least some HTA products. Most of the remainder intend to do so • 40% have strong links to regulatory machinery, another 40% have some link with regulatory processes • Various methods and sources used to obtain feedback • Indications of influence consistent with previous surveys
HTA influence survey - findings • Opinion that most HTA products had an important influence • HTAs with major influence on decisions more likely from agencies with strong links to regulatory machinery • Information on influence used in several ways in management of HTA programs, also to inform funders and clients
HTAs and disinvestment decisions • To consider early indications of the influence of HTAs on disinvestment decisions. • Suggestion by the working group • Preliminary consideration of literature and possible approaches • To develop over next year
Influences on decisions reached on technologies considered in HTAs • Proposal for case study • Review decisions reached on technology(s) covered by several HTAs • Describe influences on decisions reached, e.g. requirements of reimbursement mechanisms, input by professional bodies • For further consideration
Challenges To get people to participate Response rate: 63% Why does this matter?