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Mental Health workstream. Margaret Petherbridge . Dee Fraser . Allie Cherry . What SDS is (and what it isn’t). Personalisation ≠ Self-directed support Self- directed support ≠ Direct Payments It is based on meaningful choice and control It is a means to an end (in Scotland)
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Mental Health workstream Margaret Petherbridge Dee Fraser Allie Cherry
What SDS is (and what it isn’t) • Personalisation ≠ Self-directed support • Self- directed support ≠ Direct Payments • It is based on meaningful choice and control • It is a means to an end (in Scotland) • It is effective (but it won’t save money) • It is not a revolution (don’t panic…)
The terrain: barriers for mental health • Low awareness • Stigma and self- stigma • Professional nervousness (process and capability) • Lack of mental health stories and role models • Health route (not necessarily social work) • Small support packages and use of non- SDS services e.g. drop-in, crisis centres. • Involuntary admission= disempowering • Experience of certain mental health problems- feels like control isn’t possible.
The map: what we did Initial meeting Really small survey (n=4) Bring Your Own Evidence (BYOE) session NHS Lothian literature review
Bring Your Own Evidence (BYOE) • Something that convinces you about SDS • Mosaic not hierarchy • 9 participants
Being convinced- “It’s not logic, captain…” • Multiple influences on what we ‘count’ as evidence • What my boss wants…who I’m talking to…what I read last…the media…how I feel…what I know…my background…my experiences
The evidence we talked about • Lived experience (service user and carer) • Falkirk Mental Health Respite Vouchers Pilot • NHS Lothian SDS Pilot • IBSEN study (mental health data only) • NHS Lothian Literature review • “Self- directed support A review of the barriers and facilitators” (2011) • Scottish Government • Potential pieces of work (SRN, NHS Highland)
Method: Exploring the evidence • What stood out? • What happened? • Who was involved? • What made it work/not work? • What questions did it not answer?
Method: thinking about quality • Does it convince me? • Based on the SCIE/Keele Protocol • Evidence shopping • ‘Yes Minister’ syndrome
What we found… • Create accessible information about mental health and SDS. • Don’t make stigma based assumptions about people’s ability to cope and thrive with their own budget. • Develop strong stories of mental health recovery and SDS.
What we found(2) • Need know more about what happens in the long term. • Need to hear the individual’s whole story from start to finish. • What worked and what didn’t. • Larger groups of people • stories from people who know’ • ‘stories that let us see SDS is possible’
What we would do differently • Separate sessions • Raise awareness • Collect experience • Analyse evidence • More time! • Clearer briefing for participants.
Expedition: Where to go next Planned • Pilotlight • Mental Health Foundation research Potential • SDS recovery stories • WRAP and recovery budgets • Using BYOE for project development
contact Dee Fraser Dee.fraser@ccpscotland.org www.ccpscotland.org/providers_and_personalisation (0131) 475 2676 P&P is a four year policy and practice change programme seeking to increase the voluntary sector provider voice in SDS policy and support providers to share and develop best practice in SDS. P&P is fully funded by the Scottish Government and hosted by CCPS.