Family Resources and Supports Institute 2012 One Door: Early Start and Prevention Resource and

1. Family Resources and Supports Institute 2012 One Door: Early Start and Prevention Resource and Referral Services (PRRS) Susan Roddy, PRRS Director Sherry Torok, Executive Director Exceptional Family Resource Center FRCNCA Vice Chair

2. FRCNCA Overview

3. FRCNCA Facts at a Glance • Established in 1993 • Works on behalf of 47 ESFRCs • Recognized as only statewide network of FRCs • Implements special initiatives

4. Partnership and Collaboration

5. Collaboration For more than 23 years, Early Start Family Resource Centers have collaborated with community partners to provide information, referrals, trainings, resources and services for infants and toddlers and their families.

6. Recent changes in legislation have altered the ways in which families with children who are at-risk receive information, referrals and services.

7. 2009 • “At risk” category eliminated from Early Start eligibility • Prevention Program established 2011 • Prevention Resource and Referral Services (PRRS) established

8. What happens to babies in the 2009 Prevention Program? Continue until 36 months of age or until the regional center determines the child is eligible for Early Start or Lanterman Services or until June 30, 2012, whichever is earlier

9. 2011 Prevention Resource and Referral Services

10. Who provides the services? • DDS contracted with FRCNCA for statewide implementation of PRRS. • FRCNCA coordinates and monitors PRRS statewide through contracts with local ESFRCs. • ESFRCs provide resource, referral and outreach services.

11. FRCNCA Responsibilities for PRRS: Contract, coordinate, monitor and evaluate statewide PRRS services thru 41 local contracts.

12. Develop materials Provide training and technical assistance Design and implement policies and procedures Develop and maintain a data system

13. Documents that are available on the frcnca.org website: • Welcome Letter • Introduction to PRRS Services for Families and Caregivers

14. Orientation Script: Introducing Parents who have been referred from Regional Center to PRRS Services • Introducing Others to PRRS Services: eligibility and referral information added to use when doing outreach • Confidentiality Statement Form

15. Parent Consent for Services Form • Parent Consent for Release and Exchange of Information Among Agencies

16. School District Assessment Letter • Developmental Materials List • Local Community Agencies Log

17. PRRS Glossaries of Terms and Acronyms • General Terminology • Data Terminology • Financial Terminology

18. What is happening to babies and their families?

19. Who are the babies we are talking about? • Infants and toddlers “at risk” for developmental delay or disabilities under age three with two or more risk factors.

20. Those diagnosed by qualified clinician (pediatrician, family physician, regional center, High Risk Infant Program, Neonatal Intensive Care Unit, etc.).

21. Babies with a parent with a developmental disability.

22. Children who may be at risk for autism.

23. Where are the babies coming from? Babies referred to regional centers who are found ineligible for Early Start but meet the new eligibility for PRRS will be referred to an ESFRC with parent consent.

24. Even if you have a referral from a doctor or qualified clinician who does not believe that the child will qualify for Early Start services, the Regional Centers are to be the single point of entry for PRRS referrals.

25. …new processes are hard for everybody!

26. What do families receive?

27. Prevention Resource and Referral Services are provided at no cost to families.

28. Enhanced information and resources

29. Intake, evaluation and assessment will provide a “baseline” for the child, that will help in tracking developmental changes and possible future need for services. Referral to local regional centers

30. Planned check in • Contact family within two days of referral • Check in with family at 30 days and quarterly

31. ESFRC Responsibilities: Serve families!

32. Dialogue with families regarding their concerns, priorities and resources.

33. Provide enhanced information, resources and referral to appropriate services in the community, based on family preference.

34. Support family from referral to • Early Start eligibility • Prevention Resource and Referral Services

35. Facilitate families’ access to community services

36. Whenever possible make face-to-face contact, at least annually

37. Re-refer to regional center if developmental concerns are suspected.

38. Prepare family to transition from PRRS by age three.

39. Track and collect data for submission to FRCNCA and DDS.

40. Outreach to health community, local services, and developmental screening opportunities that enhance referrals and access to community services.

41. Maintain interactive and fluid listing of community services options.

42. Implement MOU with local regional center.

43. Regional Center responsibilities: • Point of entry for all children suspected of having a developmental delay including those with established risk and those at risk.

44. Conduct evaluation/assessment for Early Start eligibility.

45. Refer PRRS eligible children to ESFRC with parent consent.

46. Implement MOU with ESFRC.

47. What does this mean to you? • Continue to refer high risk and medically fragile infants and toddlers to your regional center!

48. Parents who have concerns continue to have a right to have their children evaluated for Early Start eligibility