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Nephrol: 1500 Nephrologists in a Professional Dialogue

Presented at. Nephrol: 1500 Nephrologists in a Professional Dialogue. cyberNephrology: A New Opportunity for the Profession A Tutorial and Interactive Seminar . Michele L. Hales University of Alberta Edmonton, AB CANADA. Bologna, Italy. November 24, 2000.

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Nephrol: 1500 Nephrologists in a Professional Dialogue

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  1. Presented at Nephrol:1500 Nephrologists in a Professional Dialogue cyberNephrology: A New Opportunity for the Profession A Tutorial and Interactive Seminar Michele L. Hales University of Alberta Edmonton, AB CANADA Bologna, Italy November 24, 2000

  2. Host Count Graph 1991 – 2000 (From July 2000) Source: http://www.isc.org/

  3. How Many Online? Internet Users Worldwide - September 2000 Nua Internet Surveys World Total 377.65 million Africa 3.11 million Asia/Pacific 89.68 million Europe 105.89 million Middle East 2.40 million Canada & USA 161.31 million Latin America 15.26 million Source: http://www.nua.ie

  4. E-mail Use Higher in Europe Than US E-mail use in Europe higher than in the US • France 64% • UK 60.3% • Germany 53.5% US only 44% Source: Oct. 13, 2000 NetValue

  5. Daily E-mail Output Globally- • 10 billion e-mails sent daily by the end of this year • 35 billion e-mails estimated to be sent every day by 2005 Western Europe- • 511 billion annually in 2000 • 1.6 trillion annually by 2005! Source: Oct. 12, 2000 IDC Research

  6. Statistics Specific to Italy • 12 million internet users in Italy • Up from 8.6 million a year ago • 16 million predicted by September 2001 • Majority of new users in 2000 were women Women are driving the Italian Internet Boom! Source: Oct. 31, 2000 Between ICT Brokers

  7. A Brief History of NEPHROL • Created in October 1994 • 1st year membership was 355 • Began as a moderated group • Legal problems/risk minimal • Birth to various offshoot groups

  8. NEPHROL’s Layout

  9. NEPH…E-mail Discussion Groups NEPHROL - general nephrology, all subjects including renal pathology and transplantation NEPHADMIN - for nephrology administrators NEPHBSCI - nephrology basic science discussion NEPHCNPT- discussions of individual clinical nephrology cases NEPHDEVEL - discussion of humanitarian projects and ISN Sister Centres Program NEPHINDIG - discussion of renal disease in indigenous peoples

  10. NEPH…E-mail Discussion Groups NEPHJNL - nephrology/transplantation journal club NEPHMIN - a stripped down version of NEPHROL-DIGEST with all repetition and North American specific content removed, designed for subscribers in developing countries NEPHNPPT - discussions of individual renal biopsy cases NEPHRONOL- Spanish - English discussion of nephrology subjects NEPHHIST - history of renal medicine, ISN video legacy project interview transcripts

  11. NEPH…E-mail Discussion Groups KFINT-L- discussion relating to the International Federation of Kidney Foundations PDIAL- peritoneal dialysis PedNeph- paediatric nephrology (for renal healthcare professionals)

  12. Patient E-mail Discussion Groups NEPHKIDS– for parents with children with renal disease KIDNEYDISEASE– for adult children with renal disease IGAN – IgA nephropathy

  13. CN: Clinical nephrology HD: Hemodialysis PD: Peritoneal dialysis HY: Hypertension TX: Transplantation NP: Nephropathology PH: Physiology IM: Immunology BI: Biochemistry CB: Cell Biology AN: Anatomy ET: Ethics UC: Underdeveloped countries DS: Disasters IP: Intellectual property, Internet publishing TM: Telemedicine MT: Meeting announcements WWW: World Wide Web resources CSN: Canadian Society of Nephrology LATF: Latin American Task Force JN: Jobs in Nephrology JP: Jobs in Renal Pathology JT: Jobs in Transplantation GEN: Messages of a general nature likely to be of interest to all NEPHROL Message Topics

  14. NEPHROL Statistics • Membership Total: 1443 • Average Total Posts per Week: 65 • (Approx. 10 posts per day) • Top 5 Recent Topics: • How to do renal biopsy? • Management of cardiomyopathy. • Renal biopsy in coumadinized patient. • External cuff extrusion. • How many nephrologists are enough?

  15. NEPHROL in General An Internet discussion group like NEPHROL is at its best when debating important questions in the field of nephrology, the answers to which cannot be found in existing journals or books, and discussing uniquely challenging patients, with the ability to instantly consult 1500 nephrology professionals.

  16. Subscription To Our Groups To subscribe to NEPHROL or any of the other groups send e-mail to: majordomo@ualberta.ca with the message: subscribe nephrol subscribe nephdevel etc.

  17. Measurable Outcomes Value of International On-line Discussion Groups - • Haiti mass poisoning -Nephrol discussion posted on HDCN - 60 minutes interview

  18. Measurable Outcomes – Cont’d Turkey Earthquake (ISN DRTF) • Aug. 16, 1999 - Massive earthquake in Turkey, DRTF deployed early; prevented many cases of ARF. Mortality among the 400+ dialyzed patients only 17% compared with the usual 50%.

  19. Measurable Outcomes – Cont’d • 1st Renal Internet Videoconferencing Between Milan, Italy and Edmonton, AB December 9th, 1996 • Sharing of Renal Pathology Images

  20. Food for Thought • 300% increase in regular Internet usage by physicians from 1997 to 1999 • Primary use of the Internet by physicians: - e-mail - personal services - educational purposes - medical journal access - communication with medical societies • 63% of doctors use email daily • 33% of them use email to communicate with patients Source: Healtheon Corporation May 07/99

  21. “Our research shows that a growing number of physicians are increasingly prepared to rely on the Internet as a primary means of obtaining clinical and medically related data and information. Moreover, our survey results indicate that physicians also recognize the important role that online linkages can play in helping their office conduct clinical and administrative transactions much more efficiently.” Mike Long, CEO of Healtheon January 20, 1999

  22. Web Based Forums • A moderated bulletin board • Open to the general pubic • Free of charge • 487 site registrants (May 2000) AJKD Forum – www.ajkd.org http://www.ajkd.org

  23. Conclusion • E-mail at the moment is an ideal communication medium • The computer can save time • The Internet will be the major avenue for health communication in the next two years • The discussions stimulated on NEPHROL should increase your knowledge and help you improve patient outcomes

  24. “We shall not cease from exploration And the end of all our exploring Will be to arrive where we started And know the place for the first time.” -- Little Gidding, T. S. Eliot FOR MORE INFO... Michele.Hales@UAlberta.CA

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