Physician Education in Developmental Disabilities Webinar Series

1. Physician Education in Developmental Disabilities Webinar Series April 19th, 2013 • MatthewHolder, MD, MBA • President-Elect • American Academy of Developmental Medicine and Dentistry

2. AADMD • A national not-for-profit formed in 2002. • Mission: To improve the quality of healthcare for people with neurodevelopmental disorders and intellectual disabilities. • Membership: mainly physicians and dentists from around the united states who devote a significant portion of their practice to people with IDD.

3. CAN Project • A national survey of medical and dental schools and residency programs in 2005. (Funded by CDC and Special Olympics) • 81% of medical students had no formal training or experience in caring for adults with IDD • 50% of dental students had no formal training or experience in caring for adults with IDD • 90% of medical residency programs offered no training in caring for adults with IDD • 90-100% of deans and residency program directors were interested in training, if somebody else developed the curriculum.

4. NCIDM Project • Joint venture between the AADMD (funded by Walmart Foundation), North Carolina MAHEC office (funded by the NCDDC) and the Family Medicine Education Consortium (residency programs in the Northeast US). • Purpose was to develop a nationally vetted, standard curriculum that could be adapted by medical schools and residency programs to teach learners how to care for people with IDD.

5. NCIDM Project • Project took 2 years and over $300,000 to complete. Involved over 30 expert advisors from around the country and 4 international advisor who had completed similar projects. Vetted through AADMD, MAHEC, FMEC, AUCD, AAIDD, Special Olympics, IASSID and others. • Developed 114 curriculum goals and objects, divided into three learning tiers. Compatible with the ACGME (Accreditation Council for Graduate Medical Education) core competencies. http://aadmd.org/page/interactive-report

6. NCIDM Project • Multiple residency programs around the country will be piloting this curriculum. Known programs are in CA, IL, OH, MA, DC, NC, KY, NY, NJ. • Beginning in 2013.

7. PEDD Project • Became acquainted with with FDDC PEDD project last year. • Purpose of the first year of the project is to develop 12 webinars aimed at family physicians based on the NCIDM curriculum goals and objectives. • Webinar series began on July 24th, 2012 and ended October 9th, 2012.

8. PEDD Project Process • Sought support from IDD-focused agencies around Florida. Received widespread support from: • Florida Academy of Family Physicians, Florida Pediatric society • University of Florida Institute for Child Health Policy • Florida State University College of Medicine Department of Family Medicine • Florida Health and Transition Services • University of Miami Miller College of Medicine Depts. of Med-Peds and Family Medicine • University of Miami Miller College of Medicine Department of Child Adolescent Psychiatry • Mailman Center • Center for Autism and Related Disabilities, Miami • Center for Autism and Related Disabilities, USF • Special Olympics Florida • Florida Center for Inclusive Communities at University of South Florida • Florida Self-Advocate Alliance

9. PEDD Project Process • Developed core team of coordinators: • Matthew Holder, PI • Nila Benito, project coordinator • Tanyika Wan, bookkeeper • John Hood, webmaster

10. PEDD Project Process • Developed core team of advisors and held a face-to-face planning meeting: • Jean Sherman, Ed.D, RN, John Reiss, PhD, Janet Hess, MPH, Tad Fisher, Matthew Holder, MD, MBA, Elizabeth Perkins, PhD, RNMH, Laurie Woodard, MD, John Satterwhite, Sandra Sroka, Dan Van Durme, MD, Stephanie Brown, MD, Sue Kabot, Ed.D, CCC-SLP, Irene Jurcyzk, David Wood, MD, Wil Blechman, MD, Nila Benito, and Holly Hohmeister.

11. PEDD Project Process • Held quarterly advisory and planning committee meetings. • Established webinar series curriculum, including learning goals and objectives. • Published article about the project in the Florida Journal of Family Medicine

12. PEDD Project Process • Developed a speakers bureau: • Elizabeth Perkins, Laurie Woodard, Seth Keller, Curt Stine, Jean Sherman, Carole Zangari, Alice Pomidor, John Satterwhite, Linda Edwards, Deb Dreyfus, Nila Benito, Steve Ruedrich, David Wood, Janet Hess, Carl Tyler, Charm Thometz, Jeff Okamoto, Matt Holder, Tom Curry

13. PEDD Project Process • Established the following presentation schedule: • July 24th:History and Terminology • July 31st:The Common Characteristics of Neurodevelopmental Disorders • Aug. 7th:Communication (Patient, Parent/Caregiver and Inter-professional) • Aug. 14th:Responsiveness, Respect, Self-Determination and Consent • Aug. 21st:The Patient Support System • Aug. 28th:Assembling Accurate Clinical Information (Part 1) • Sep. 4th:Assembling Accurate Clinical Information (Part 2) • Sep. 11th:Optimizing Well-being • Sep. 18th:Transitions from Pediatric to Adult Care • Sep. 25th:Identifying Quality Resources and Improving Practice Quality • Oct. 2nd:Behavior and Medication Management • Oct. 9th:Healthcare Financing

14. PEDD Project Process • Developed focus group of physicians who are not experts in the DD field: • Dick Schrot, Charles Vega, Suzanne Harrison, Jose Rodriguez, Jon Applebaum, Paul Dassow, Leslie Griffin, NiharikaSuchak, Michael Shephard

15. PEDD Project Process • Each webinar presentation was reviewed by focus group members prior to the live webinar. • Learners asked to fill out a satisfaction survey and must complete a short quiz in order to receive CME credit for participation. • Learners are able to participate and receive CME credit free of charge. This includes viewing the recorded sessions for the next two years.

16. PEDD Project Process • Webinars were marketed via: the AADMD, the organizations that wrote letters of support, including the FAFP and Florida Pediatric Society. Also the Florida chapter of the ACP and the Florida Medical Society and through local county medical societies. • Each webinar is accredited by the American Academy of Family Physicians. • Each webinar was presented live and will be archived for 2 years on the AADMD website where learners will be able to get CME credit for participation.

17. Live Event Registration Data • Total Registrants – 495 for live events, 265 for recoded event • Total US Registrants – 483 (39 states including Florida) • International Includes – Australia, Canada, Great Britain, Mexico, Myanmar, Philippines • Total Florida Registrants – 74 • Total Physicians -142 • Total Residents – 8 • Total Students – 12 • Total NP – 39 • Total Other – 294 (Professors, Case Managers, Psychologists, CEOs, Directors, Nurses, DSPs, Dieticians, etc.)

18. Live Event Registrations

19. Live Event Registrations

20. Satisfaction Surveys

21. Satisfaction Surveys

22. Satisfaction Surveys

23. Satisfaction Surveys

24. Satisfaction Surveys

25. Satisfaction Surveys

26. Satisfaction Surveys

27. Additional Data • Total composite survey score 4.2 / 5.0 • Total number of archive views 615 • Total number of certificates awarded 634 • Total number of certificate system users 265 • Total Project Personnel 49 • 17 Advisors • 19 Speakers • 9 Reviewers • 4 Staff • Additional National Impact – AAIDD, NADD, AUCD, NASDDDS, Special Olympics North America, CDC, State DD Councils, ANCOR, ResCare, Mentor Network, and more!

28. The National NCIDM Agenda • 12-hour primary care webinar series (October, 2012) • 9-hour emergency/hospital care webinar series (December, 2012) • 9-hour webinar series on dementia and DD (May, 2013) • Developmental Medicine Textbook (to be published in 2013) • Piloting of curriculum in residency programs (2013 and 2014) • 8-10 programs outside of Florida • 2 programs (tentatively) in Florida (FDDC, phase 2) • Coordinating another $300,000 in grant dollars to pilot the curriculum

29. Thank You • Matthew Holder, MD MBA • mattholder@aadmd.org • 602-625-3805

30. Expanding Curriculum for Healthcare Professionals Allen Wong, DDS, EdD, DABSCD Professor, Dental Practice Director AEGD Program and Hospital Dentistry Pacific Dugoni School of Dentistry 2155 Webster Street SF, CA 94115 awong@pacific.edu

31. Advancing the Curriculum Agenda Pre- and Postdoctoral Dental Education Compared to Practice Patterns in Special Care Dentistry –Journal of Dental Education Dec 2012 Paul Subar, D.D.S., Ed.D.; Elisa M. Chávez, D.D.S.; Jeffrey Miles, Ph.D.; Allen Wong, D.D.S., Ed.D.; Paul Glassman, D.D.S., M.A., M.B.A.; Eugene LaBarre, D.M.D., M.S.

32. Review Findings of Article

33. Education beyond Dental School • Continuing Education at meetings Dental and Medical • Study groups • Hospital and Community Inservices, Allied Health… • Student groups … AADMD Student Clubs • Webinars • Others…… • Collaboration EX: UCSF Update on Developmental Disabilities

34. Creating a Curriculum • Tell them what they need to know • Tell them why they need to know it • Help them become your agents of education

36. Collaboration with Pharmacy School • Review of a Project AADMD and Pacific School of Pharmacy • Medication Chart to Pass out…(for Attendees of Session)

37. Medical School Perceptions • Results of interesting data of recent informal survey • Michael Suh‘14 ICS Project, mentee

38. Questions? • Thank you… • Matthew Holder, MD, MBA ( mattholder@aol.com) • Allen Wong, DDS, EdD, DABSCD ( awong@pacific.edu)