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Pseudonymisation as a Service

Pseudonymisation as a Service. Robert Navarro. Ethical Data Sharing. Sapior Vision. Enabling the Ethical Sharing of Data. Trust Management Researchers Preventative medicine Pharmaceuticals Insurers Health Entrepreneurs. Data Guardians. Data Consumers. Enhanced Trusted Third Party.

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Pseudonymisation as a Service

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  1. Pseudonymisation as a Service Robert Navarro

  2. Ethical Data Sharing Sapior Vision Enabling the Ethical Sharing of Data Trust Management Researchers Preventative medicine Pharmaceuticals Insurers Health Entrepreneurs Data Guardians Data Consumers

  3. Enhanced Trusted Third Party • No ECC approval needed! • On demand, no pooling • Easy to upload data • cleansing, standardisation, enriching, de-ID done on-site • Pseudo and linking done in eTTP • Separate collection per application • No data visible to eTTP • Ethics approval easy

  4. Features and Benefits No breach risk in “pipeline” Easier/faster Ethics/IG approval Use eTTP on demand No/low cost when not collecting/linking Separate collection for overlapping projects Informed consent possible Easy uploading of data No need to pool data across projects No eTTP pooling of data No growing breach risk in eTTP Highest grade pseudo No technical worries over security

  5. Standards that would be helpful… • Metadata to describe data for upload (including null/missing values) • Common means for extracting CSV data from local systems To register for a trial:

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