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Open Pseudonymisation Project

Open Pseudonymisation Project. Julia Hippisley-Cox, 2011 www.openpseudonymisation.org. QData Linkage Project. QResearch database already linked to deprivation data cause of death data Very useful for research better definition & capture of outcomes Health inequality analysis

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Open Pseudonymisation Project

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  1. Open Pseudonymisation Project Julia Hippisley-Cox, 2011 www.openpseudonymisation.org

  2. QData Linkage Project • QResearch database already linked to • deprivation data • cause of death data • Very useful for research • better definition & capture of outcomes • Health inequality analysis • Improved performance of QRISK and similar scores • Decided to link to additional data sources

  3. QResearch Linkage Project Data source Content Inpatient, outpatient, A&E, maternity Cancer type, grade stage Heart attack type and treatment • Hospital Episode Statistics • Cancer registry • MINAP ‘Myocardial Infarction National Audit Project’

  4. New approach pseudonymisation • Need approach which doesn’t extract identifiable data but still allows linkage • Legal ethical and NIGB approvals • Secure, Scalable • Reliable, Affordable • Generates ID which are Unique to project • Potential to be used NHS wide as Open Source Common Specification

  5. Pseudonymisation: method • Scrambles NHS number BEFORE extraction from clinical system • Takes NHS number + project specific encrypted ‘salt code’ • One way hashing algorithm (SHA2-256) • Applied twice in to separate locations before data leaves EMIS • Apply identical software to external dataset • Allows two pseudonymised datasets to be linked • Cant be reversed engineered

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