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It’s About How You LIVE. A National Campaign to Improve Care at the End of Life. Ideally…Wouldn’t it be great if. Community organizations and health care providers were working together to improve end-of-life care (EOLC)
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It’s About How You LIVE A National Campaign to Improve Care at the End of Life
Ideally…Wouldn’t it be great if • Community organizations and health care providers were working together to improve end-of-life care (EOLC) • People were aware of EOLC issues and knew where to find resources before a crisis • Hospices, palliative care organizations, coalitions and others had resources to conduct community outreach initiatives
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has. Margaret Mead
Teachable moment like never before! Terri Schiavo Pope If not us, who? Bioethicists? Religious leaders? Activists? Journalists? Academics? Acute care physicians? Lawyers Wake Up Call!
It’s About How You LIVE • Sponsored by the National Hospice and Palliative Care Organization (NHPCO) • Focused on improving access to quality end-of-life care • Provides a unified message across the country to empower consumers to take action • Funded by the Robert Wood Johnson Foundation Support for Caring Connections was provided by a grant from The Robert Wood Johnson Foundation, Princeton, New Jersey.
LIVE Message • Learn about your options • Implement plans to ensure your wishes are honored • Voice your decisions • Engage others
The LIVE Continuum Not aware of end-of-life options Willing to share what you’ve learned Learn about your options Implement a plan Voice your decisions Engage others
A National Campaign • A series of coordinated actions • Standard messages • Flexible resources that can be adapted • Implemented to focus on the unique needs of the community
One Voice • Consumers can hear one message promoting awareness and action • People demanding improvements in and earlier access to quality end-of-life care
Campaign Benefits • Complements existing outreach and marketing materials • Supplements educational programs • What is hospice? • Advance care planning • Pain • Supporting caregivers
LIVE Campaign Goals • Stimulate dialogue in communities about the need for improved end-of-life care. • Provide information to consumers about how to access end-of-life care resources • Encourage action to improve end-of-life care
Campaign Toolkit Outline • Delivered in a toolkit format - FREE • CD-ROM • Online (www.LIVEpartners.org) • Includes practical strategies, tools and resources • Has flexible components to modify and add information about local initiatives
Toolkit Resources • PowerPoint presentation • Consumer resources • Funding ideas – plus a donor solicitation letter • Event planning guide • Marketing materials – Advertising, PSAs and flyer/poster templates • Press kit – Press release, Op. Ed • Evaluation tools….and more
LIVE Partner Benefits • E-updates as new resources are developed • LIVE Rewards program recognizing excellence • Free Gift Cards for NHPCO’s Consumer Marketplace product line • Free audio conferences on outreach and engagement
NHPCO Consumer Resources • HelpLine - 800.658.8898 caringinfo@nhpco.org • Web site – www.caringinfo.org • Consumer education materials and advance directives
Why Should We Join LIVE? • Receive FREE community outreach and education resources • Participate in free trainings about the LIVE campaign, outreach and engagement • Be part of a unified message – with your local spin • It’s FREE!
You Can Help! • Let others know about the campaign at every opportunity • Connect members to campaign and resources available at www.endoflifecoalitions.org • Refer consumers to NHPCO’s HelpLine and/or www.caringinfo.org
It’s About How You LIVE Live so you don’t regret the things you have done or wish that you had acted differently. Live life honestly and fully. Live. Elisabeth Kübler Ross