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The GIS for the Long Island Breast Cancer Study Project. Ellen F. Heineman, Ph.D. National Cancer Institute Epidemiology & Genetics Research Program. The northeastern United States has had high rates of breast cancer.
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The GIS for the Long Island Breast Cancer Study Project Ellen F. Heineman, Ph.D. National Cancer Institute Epidemiology & Genetics Research Program
The northeastern United States has had high rates of breast cancer The LIBCSP focuses on Long Island - Nassau and Suffolk counties in New York
Long Island Breast Cancer Study Project (LIBCSP) • Part of the overall research approach of the National Institutes of Health • Mandated by Public Law 103-43 • Funded and coordinated by NCI and NIEHS • Consists of more than 10 research studies • Includes a GIS
Long Island GIS Objectives • Develop an effective tool for investigating environmental factors that may contribute to breast cancer • Help share health related and environmental information with the community
What questions can be addressed? • What are the rates of breast cancer in the community (overall, in smaller areas)? • Can we identify clusters of cases, or areas with significantly higher rates? • Where might exposures of interest (to scientists, to the community) come from? • Are there correlations -- spatial relationships -- between disease and potential exposures? • More sophisticated: Are potential environmental exposures linked with breast cancer, taking other factors into account?
Example: Are disease rates “near” waste sites the same as in areas outside the buffers?
Datasets will include • Geospatial • Demographic • Health • Environment • Federal • State • County • Private
Geospatial • Base Maps: • Cadastral Data (tax lots, parcels) • Political Boundaries • Roads • Railroads • Hydrology (water supply, rivers, streams) • Aerial Photography and Satellite Imagery
Demographic • Census Data: • Counts of the population • Descriptive information about individuals Age Race Gender Income groupings • Descriptive information about households Type and age of housing Rural or urban • National Nutritional Health and Lifestyle Survey
Health • Medical outcomes • State Cancer Registry • Medicare • Hospital discharges • Medical facilities
Environmental • Land use and land cover • Utilities (electrical, gas, water…) • Traffic volume • Hazardous materials: usage, storage, and disposal • Pesticide / chemical use or contamination • Industrial release of chemicals to air, water, and soilcontinued…
Environmental,continued • Air quality monitoring results • Drinking water analysis (pesticides, metals, volatile organic compounds) • Weather and climate information • Radiation information
Progress on development of the GIS • Supplementary info, links • Town meetings • Future: maps and information for public www.healthgis-li.com
Important issues • Data are imperfect • Examples: addresses, sparse data, data collected for other purposes • Potential exposure not necessarily actual exposure • Time frame and latency of cancer • Substitutions and additions may be recommended as we go along • The website will not include software • The eye is not a good analytic tool • Confidentiality
Unique aspects of the GIS for the LIBCSP • Concerted investment of effort and funds to integrate GIS into an epidemiologic study of breast cancer • Community input and access • Systematic attempt to include high quality data, comprehensive metadata • A prototype and resource for future studies