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Consumer and Provider Engagement Committee

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Consumer and Provider Engagement Committee

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    1. Consumer and Provider Engagement Committee Update to HIIAB February 27, 2008

    2. Committee Members Ed Singler Dr. George Rice Gil Thurston Dr. Chris Thayer Peggy Evans Wendy Carr Maggie Lohnes Kelly Llewellyn Patient Patient

    3. Work plan: Three Phases

    4. Stakeholder Recruitment Contacting list of consumer and provider organizations The ask Send out initial invitation to members Drive them to our website to sign up for email distribution list Use email list to educate and engage stakeholders about HRB Possibly host a focus group of its members

    5. Key Messaging Work with Rialto Communications to draft stakeholder participation invitation What is a Health Record Bank? Who’s building it and why? What makes it different? Portability Consumer Control Compelling use case specific to each audience Initiative Champion from within each audience Marketing a concept to increase demand Does the term “Health Record Bank” resonate with consumers?

    6. First contacts have been positive! Children’s Hospital “Patients as Consultants” team AARP Their 2008 health campaign around personal responsibility, access, and affordability Committed to a State-wide mailing in May Foster Care Bringing continuity to the medical record and the child’s care

    7. What must we do? Primary “user” consumers and their caregivers. Activation: aggregate, scrub, bring info to apptsPrimary “user” consumers and their caregivers. Activation: aggregate, scrub, bring info to appts

    8. Releasing the tension Value Proposition for a consumer-controlled HRB: Consumers and providers have different needs and different assumptions Many HRB “roadblocks” are due to legal, work flow, and data integrity issues for providers How do we focus back on consumer activation and well-informed provider/patient conversations?

    9. Rethinking how much to accomplish in Phase I Lightest touch possible on providers Initial Pilots: Create a useable repository for consumers Incentivize and facilitate industry deposits Allow a way to print and to view for providers who choose to do so Focus on source metadata, access controls, and displaying data from consumers and providers in the same place

    10. Later Phases Provider Access to Information “Withdrawals” Work flow issues Liability issues Data integrity issues Consumer Deposits in EMRs A future where consumer data is seen as “complementary” to clinical information and is useful for decision-making

    11. What we can’t give up The commitment to “disruptive innovation” The consumer Qualified control isn’t control Bring consumers to the table in a new way Give them more tools and more info Then rethink the expectations around the provider/patient relationship

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