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Essential Questions Chapter 6

Essential Questions Chapter 6. How do families face the challenges that inevitably occur when a child with special needs is a part of the family? Can I enrich their lives?. Big Ideas Chapter 6. What is the reaction of the family initially? What factors influence these reactions?

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Essential Questions Chapter 6

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  1. Essential QuestionsChapter 6 • How do families face the challenges that inevitably occur when a child with special needs is a part of the family? • Can I enrich their lives?

  2. Big IdeasChapter 6 • What is the reaction of the family initially? What factors influence these reactions? What reactions typically follow? • How can family relationships be affected? • How is support offered to families? • How do competent professional respond?

  3. Chapter 6 cognitive coping strategies family-centered support

  4. Chapter Six Exceptionalities and Families

  5. The initial reaction….SHOCK sadness … guilt …disappointment loneliness…fear…anger…frustration… devastation…numbness…uncertainty…trapped… depression…grief…inadequate…helpless…

  6. Factors that Influence a Family’s Response to the Birth of an Infant with a Disability • The type and severity of the disability • The emotional stability of each family member • Socioeconomic status • Religious values and beliefs • Cultural perspective Text page 128 cites various studies.

  7. What factor(s) can impact the parent-child relationship? • nature of disability b. severity of disability c. socioeconomic status of the family d. all of the above

  8. In the U.S., what percentage… of children with disabilities come from impoverished homes? • 15% • 28% • 53% • 60%

  9. Stages of Adjustment shock realization defensive retreat acknowledgement

  10. Stages of Adjustment • Stages may not follow a pattern or be consistent • Stages may overlap and resurface • Process is continuous and is different for individuals

  11. Cognitive Coping Strategies can help reduce or successfully manage feelings of shock, distress, and/or depression (etc.), facilitate clear thinking, and promote positive thoughts about the ability to respond effectively to the child’s needs.

  12. Interactions and Relationships spousal parent-child mother-child father-child siblings extended family ALL ARE AFFECTED. text pages 133-140

  13. Mother-Child Relationship • A very close bond • Child may communicate only with Mom • Mom may become overprotective denying child opportunity • Mom may neglect child with need

  14. Mother-Child Relationship The key Mom’s behaviors/responses is her hope for the future of the child.

  15. Father-Child Relationship • Internalize feelings; Reserved, guarded • Depends on gender of the child • Concerned about development educationally and socially • More affected by whether or not the disability is visible; Severity of disability • May spend less time with child • May be of great support to and eager to learn with other family members

  16. http://sheepdogger.blogspot.com/2014/04/happy-birthday-jake.htmlBlogger Greg Lucas is the author of Wrestling with an Angel. “Sometimes when I look into your silent eyes, I still connect with those quiet mornings in your nursery, when all our dreams were before us—so young, fresh and new. And I wait patiently, in hopeful anticipation of future grace, for the time to come when you are set free from your disability. A moment of eternity when we will walk steady and talk of deep things that fathers and sons discuss.” - A blog entry on the occasion of Jake’s 21st birthday. April, 2014

  17. Sibling Relationships • Positive response; Contributing significantly to the intellectual, social, and/or affective development • May desire to please a parent who they believe may be disappointed • Resentment • Anxiety or even guilt Siblings may turn to one another for support when parental attention is on the child with significant needs. An older daughter is a prime candidate to take on the role of a parent substitute.

  18. “Family-centered support, services, and programsencourage families to take the lead in establishing and pursuing their priorities.”Text, pg. 141 cites (Brown, 2004; Dempsey & Keen, 2008;Epley, et al., 2010)

  19. Family-Centered Care/Support

  20. Positive Behaviors Practiced by Competent Skilled ProfessionalsInteracting with Families • Establish rapport. • Build relationships. • Be supportive. • Be sensitive. • Share information. • Listen well. (Blue-Banning et al., 2004 and Luckner&Veaski, 2004) Results from other studies can be found on text page148.

  21. Dates to Remember Thursday, September 25 Receive instructions Test Tuesday, September 30 Topic sign up open NO CLASS Thursday, Oct. 2 and Tuesday, October 7 Thursday, October 9 Article Review #2

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