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HIV in Europe Initiative: Improving Early Diagnosis and Case Management

The HIV in Europe Initiative aims to build a European platform for exchange and activities to improve early diagnosis and case management of HIV/AIDS across Europe. This initiative, supported by researchers, health professionals, policymakers, and patient advocacy groups, focuses on reducing the number of late presenters and developing new methodologies to address the challenges of HIV/AIDS. The Stockholm conference will discuss the progress and plans for new projects, including the definition of late presenters and the implementation of current and future results.

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HIV in Europe Initiative: Improving Early Diagnosis and Case Management

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  1. Accomplishments since Brussels 2007 conference Prof. Jens Lundgren, MD DMSc Co-chair “HIV IN EUROPE” Initiative steering committee University of Copenhagen & State University Hospital, Denmark

  2. Aim and structure of initiative • Aim • Build a European platform for exchange and activities to improve early diagnosis and early case of HIV/AIDS across Europe • Kick-off: HIV in Europe 2007 conference, Brussels • Governance: • Steering Committee (12 members, 3 co-chairs) • Representation from patient advocacy, policy makers, health professionals and European public health institutions (WHO-Europe and ECDC, Global Fund) • HIV in Europe Secretariat • Political - EATG offices in Brussels (Nikos Dedes / Nicole Heine) • Operational – Copenhagen HIV Programme (Dorthe Raben / Michelle Ellefson)

  3. Long-term aim of initiative • Inform ECDC, WHO-Europe and Member State Health Authorities to have applied methods that reduce the problem • Kick-start • Monitor • Assessment of success: • Reduce % ”late presenters” among HIV-infected persons presenting for care • Currently 40-50% are late presenters

  4. Reasons for late presentation • Not previously diagnosed with HIV • Lack of impetus for testing • No access to screening / routine screening not done • Don’t seek testing because not perceived to be infected • Offered test but declined as not perceived to be at risk • Deterrants to be tested (stigmatisation) • Previously diagnosed with HIV - never accessed care • For personal, social and/or other reasons • Health system is not accomodating care

  5. The HIV in Europe initiative: 2007-2010 Coordination of the initiative Size of the problem # of infected population not yet in care Inventory of existing methodologies Develop new methodologies Requirements for data on assumptions required estimation A “late presenter” Definition Epidemiology in last decade (baseline) Indicator-disease guided testing Define diseases and conditions with HIV prevalence >0.1% Quantify degree of stigmatisation (stigma index) Mapping legislation that criminalises behaviours of persons infected with HIV across Europe

  6. Aims of the Stockholm conference • Renew the focus on the HiE initiative • Bring together researchers, health professionals, health policy makers, and patient advocacy groups • Discuss status and plans for new projects supported/initiated by HiE • Present concrete results • Definition of late presenter • First list of HIV indicator diseases • How best to implement current and future results derived from the initiative

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