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SW 644: Issues in Developmental Disabilities The Wisconsin Children’s Long-Term Support Service System: Where We’ve Been, Where We Are, and Where We’re Going. Lecture Presenters: Beth Wroblewski, DHS DTLC Deputy Administrator & Sally Mather, MSSW
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SW 644: Issues in Developmental DisabilitiesThe Wisconsin Children’s Long-Term Support Service System: Where We’ve Been, Where We Are, and Where We’re Going Lecture Presenters: Beth Wroblewski, DHS DTLC Deputy Administrator & Sally Mather, MSSW Department of Health Services, Bureau of Long-Term Support Children’s Section
Children’s Long-Term Supports • Where we’ve been • System focused on adults • Institutional settings • Colonies Centers • Role of Parents
Educational Services • Right to an education for children with disabilities • Segregated, self-contained classrooms • Legislative Changes • Free and Appropriate Education
Evolution of WI Children’s Long-Term Support (CLTS) Programs • Family Support Program • Provides goods and services to keep children in their homes • Grant funded – Board for People with Developmental Disabilities • County expansion Statewide
Evolution of WI CLTS Programs • Katie Beckett Program • Parent initiative • Tax Equity and Fairness Reform Act • Access to Medicaid Wisconsin Forward card • Voluntary • Benefits • Children and families • Taxpayer
Evolution of WI CLTS Programs • Katie Beckett Program • Partnership • Public – Private • System – Family • Programmatic structure based on partnership • Value parents as the experts
Families’ Experience • Historically • Disability as a medical condition • Disconnection of families • Messaging still occurs • Evolution of CLTS system
Normalization & Social Justice • Wolf Wolfensberger • Community inclusion as a civic issue • Values-based training
Evolution of CLTS continued… • Shift in systematic foundational values • “light touch” v. comprehensive plans • Home and Community Based Service (HCBS) waivers • Issue for families: some supports available only in out-of-home placements • Redesign of adult support system
Issues Surrounding Access • Fragmentation • Coordination • Issues when families are involved with multiple systems
Choice in services • Menu: Fitting child to the available programs and service options v. child and family-centered planning • Outcome-based language
Quality • Who determines quality? • Are needs being met? • Are family-based outcomes being achieved?
Funding • Evolution of system + State and Federal regulations = Silos of funding • Compass Wisconsin • Blending sources of funding • More seamless for families
Concepts of Compass Wisconsin • Children and families as the North Star • Partnering with families in navigation • Example re utilization of Family Support Program • Trust • Access – Compass Wisconsin Threshold
Concepts of Compass Wisconsin (continued…) • Waiting list reduction • Relational v. “Transactional”
Wisconsin compared to other States • Best-practice & value-based • Commitment to children and their families • Waiting lists • Paternalistic language/values and practice reflected • Learning opportunities
Conclusion • Continued Professional Development • Systematic Challenges • Caseload • Training • Learning conversation opportunities • Shift of shared responsibility to entitlement See Transcript for Biographical Information