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CALL Care Project

CALL Care Project. Supportive Care of the Dying: A Coalition for Compassionate Care www.careofdying.org. Current Sphere of Influence. Started in 1994 in Oregon Funded by system member dues and small grants 14 Committed Systems / Organizations Health Care Presence in 49 state.

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CALL Care Project

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  1. CALL Care Project Supportive Care of the Dying: A Coalition for Compassionate Care www.careofdying.org

  2. Current Sphere of Influence • Started in 1994 in Oregon • Funded by system member dues and small grants • 14 Committed Systems / Organizations • Health Care Presence in 49 state

  3. Project as Natural Evolution • Living and Healing During Life Threatening Illness • Organizational Assessment • AICC training

  4. Purpose • Demonstrate a continuity of care and quality improvement model building on strengths of the organization and community • Evaluate the program effectiveness from the individual, bereaved family and system perspectives

  5. Comprehensive • Physical, emotional, spiritual and relationship focus • Patients and families • Various life - threatening disease diagnoses

  6. Adaptable • Flexible over time for person and caregiver • Link services • Develop services which are currently unavailable • Accessible within a variety of funding or reimbursement strategies

  7. Longitudinal • Progressive life threatening illness • Life expectancy may be unknown • Services available across a variety of care delivery sites - without disruption

  8. Life - Affirming • Focus on goals • Assist the person and caregiver to live fully • Re - assess as illness limits life

  9. Timeline / Funding for each site • 18 month project • Started August 2001 • Completion February 2003 • Site Grant Funds • To be used for Project Coordinator • Cannot be used for Clinical Care salary • $25,000 combined RWJF and Coalition

  10. 12 sites • Differing cultural and demographic characteristics • Promote knowledge transfer within and between health systems • Project sponsored by Mission Leaders and approved by CEO

  11. Start - Up Challenges • Organization ownership change • Local IRB review and standards • Personnel changes • Operations level support

  12. Positive Experiences • Expand views of palliative care services • Links stronger in community • Focus on out patient services / specialty clinics • System leaders championing the initiative

  13. Diagnosis Cancer / Oncology patients CHF / Cardiac Disease patients classification of stage III or IV COPD / Respiratory Failure Dementia Inclusion Criteria Any stage IV stage cancer Ejection Fraction of < 25 or NY state Heart Association O2 needed in order to perform ADLs and / or Karnofsky score of <50 Stage > 6 on FAST functional scale or not eating Participants(30-50)

  14. Products • Establish longitudinal benchmark data recognizing successful practices • Produce a record of the development of site specific projects and learnings • Compare learnings across sites

  15. Outcomes • Improved experiences for patient and family caregiver • Cost effective linkages and services • Reimbursable services • Ongoing models developed locally • Knowledge transfer

  16. System versus Individuals • Healthcare professionals experience the system and individuals • Patients and families experience the individual and the system

  17. Goal for Care • “I am completely satisfied with the care….I am at peace with my fate…..My favorite quote is “do not worry about tomorrow, God is already there.” • “”Death is not a failure; for me a failure would be to be unable to support the patients and family in the dying process.”

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